I know, even I am tired of all the posts from me lately, but since this one is not about Serono I thought it might be interesting...naive, I know.
My second event was a bizarre one. I had been in the silly habit of falling asleep on the couch in front of the television. This night, for some reason, I fell asleep without the usual benefit of a cushion or pillow under my head. Pragmatically, I used the arm of the couch, which was essentially no more than a plank of wood. During the night, I rolled over, and took the weight of my head, neck, and upper torso on the other side of my neck, somewhat relieving the first side. By the time I got up I had a pretty sore neck. I didn't really get much sleep.
All this happened so long ago I can hardly remember (early 1989).
Eventually that day I noticed my left pinkie was numb. I did not connect it with the hardwood pillow at first, but since I played guitar and since it persisted until this day, I went over it in my mind a few times.
My first event I really can't remember too well. I had an attack, probably precipitated by the hot day in an electonics lab. In those days a lot of hand-drawn work was still done, and I found I could not draw a freehand line, where I had been able to the day before. It was so ephemeral that even after CAT scan etc., every doctor I saw thought I was nuts. Except at the very end when I described to a neurologist a funny symptom where instead of putting my key in my doorknob, it went around in circles. He named the symptom, but I never found out the cause.
Part of the problem was this: I always got to wait, in an air-conditioned, cool room (it was July) to see anyone. So by the time I did, I had cooled off and had no more symptoms. It might come back in the car on the way home. I think now that it was triggered by the July heat, but at the time, nobody had a clue. It cleared up by itself about six months later, and did not appear again until the pinkie, so that was 7 years of remission.
At the time of that first attack, with its keyhole intention tremor, a friend was in a diving accident and broke her neck. She is now a so-called "walking quad" because of the site of the injury, and quick and expert neurosurgery (coincidentally by the same guy who put the hydrocephalus shunt in my brother's neck in the early sixties). Anyway when she was recovering from surgery I went to see her. I told her about my numbness since that was the extent of my news. Lying there with her neck broken she said don't worry, I'm sure they'll figure it out. We are still good friends. CCSVI may even be something she could use, who knows? Her symptoms are eerily similar to mine. She has prepared me for what was to come.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.