ozarkcanoer wrote:NOTHING is obvious and I don't believe Dr Zamboni is a fraud... he is a wonderful person. But I don't think CCSVI is obvious at all and I have had the CCSVI procedure. The only two people who have done any real science are Dr Zamboni and Dr Zivadinov. CCSVI is still only a promise and not a reality to most people with MS.
He discouraged people from asking for routine examination for May-Thurner, and gave stats, which parallel the stats on CCSVI, on prevalence: because May-Thurner is no more prevalent in normals than in CCSVI patients, it would take other symptoms before it would be justified to look for it with a catheter.
questor wrote:Ozarkcanoer, well said. I've also had the procedure, a very early form of the procedure and have two stents to show for it. I've admired Dr. Embry for years, but it often seems that those who are searching for hope and answers for someone they love (Dr. Embry for his son, Dr. Zamboni for his wife, etc) are most likely to get a little unbalanced in their zeal. From what I understand, Dr. Zivadinov doesn't belong to this camp, which I consider to be a good thing for scientific objectivity, balanced view, etc.
HappyPoet wrote:I'd like to note for those who may not know that if it wasn't for the passion, interest, and courage of such wonderful leaders as Dr. Zamboni (wife has 'MS'), Dr. Hubbard (son has 'MS'), Dr. Embry (son has 'MS'), Dr. Sclafani (wife has only one IJV), and Joan Beal AKA cheerleader (husband has 'MS'), CCSVI would not be the story it is today.
questor wrote:Oh, my! Exactly my point!
HappyPoet wrote:I was trying to say that passion drives and stands alongside objectivity, that they need each other. Without the people mentioned above, there wouldn't be any CCSVI studies for us to be talking about. Dr. Zamboni and Dr. Zivadinov, alongside each other. Cheer and Dr. Dake alongside each other. Dr. Hubbard and Dr. Haacke alongside each other, and so on.
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