'Multiple sclerosis patients navigate the minefield ... '

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

'Multiple sclerosis patients navigate the minefield ... '

Postby Cece » Wed May 11, 2011 11:12 am

www.theglobeandmail.com/life/health/new ... 967/page1/

For example, David Hubbard, a well-known neurologist in San Diego, broke ranks with colleagues after performing the procedure on his son, who has MS. He now offers it to others and is collecting results as part of a clinical study.

“It’s easy for the academics to say, ‘Let’s wait until all the research is done,’ but it’s just not fair to the patients,” Dr. Hubbard said in a recent interview. “Patients are not willing to wait.”
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Re: 'Multiple sclerosis patients navigate the minefield ...

Postby scorpion » Wed May 11, 2011 11:25 am

Cece wrote:www.theglobeandmail.com/life/health/new-health/health-news/multiple-sclerosis-patients-navigate-the-minefield-of-for-profit-care/article2015967/page1/

For example, David Hubbard, a well-known neurologist in San Diego, broke ranks with colleagues after performing the procedure on his son, who has MS. He now offers it to others and is collecting results as part of a clinical study.

“It’s easy for the academics to say, ‘Let’s wait until all the research is done,’ but it’s just not fair to the patients,” Dr. Hubbard said in a recent interview. “Patients are not willing to wait.”


Oh ok. I thought your post might be referring to this forum. :wink:
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Postby Cece » Wed May 11, 2011 11:26 am

that too :D
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Canadian CCSVI advocate needed to engage with G&M

Postby MarkW » Wed May 11, 2011 1:54 pm

I suggest that a Canadian CCSVI advocate is needed to engage with the Globe & Mail. The journalist needs help with collecting data and preparing facts about CCSVI. Is the no one in Canada able and willing to do this ???

MarkW

PS this is not a small task but worth it...........
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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Postby 1eye » Wed May 11, 2011 2:15 pm

Judging from the google response to the four words "serono globe and mail" they are still sitting on that story. I suspect somebody keeps them from saying anything much that is positive about CCSVI.

Like I said, the absence of news is sometimes news, and in this case, it is something the Globe and Mail's competitors might want to know about. Or say, CTV?

Today's wrinkle is that all the states want a piece of the settlement. In G & M? Nope.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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