WHAT IS THE NEXT STEP?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

WHAT IS THE NEXT STEP?

Postby dania » Wed May 11, 2011 8:34 pm

I think we must start to think beyond angioplasty. Open veins = improvements. But with so many of us restenosing and developing totally occluded veins that are impossible to unblock we must search for other ways to keep the blood flowing.
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Re: WHAT IS THE NEXT STEP?

Postby cheerleader » Wed May 11, 2011 8:48 pm

dania wrote:I think we must start to think beyond angioplasty. Open veins = improvements. But with so many of us restenosing and developing totally occluded veins that are impossible to unblock we must search for other ways to keep the blood flowing.


Agree. check out the endothelial health program, Dania. It's all about keeping the lining of our blood vessels healthy and maintaining nitric oxide balance. Based on cardiovascular Dr. John Cooke's research. Hope it helps-- I wrote it up for Jeff and he's doing well on it.
http://www.ccsvi.org/index.php/helping- ... ial-health
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Re: WHAT IS THE NEXT STEP?

Postby drsclafani » Wed May 11, 2011 8:51 pm

dania wrote:I think we must start to think beyond angioplasty. Open veins = improvements. But with so many of us restenosing and developing totally occluded veins that are impossible to unblock we must search for other ways to keep the blood flowing.


while i am no longer sure that it is inevitable, restenosis of veins is common for other diesases. the extra large balloons took their toll, for sure but i think we are making progress with angioplasty
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Postby dania » Wed May 11, 2011 9:02 pm

I developed scarring in all 3 veins which are now totally occluded. Thanks, Cheer but at this point nothing can help with the scarring. At least that is what Dr Siskin and Dr Arata told me. I am thinking of a vein bypass which Dr Spagnola in Italy did on a patient with amazing results.
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Postby cheerleader » Wed May 11, 2011 10:01 pm

I apologize, Dania. I did not realize the severity of your case. I hope my post did not read as insensitive. I hope there are answers for you.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby civickiller » Thu May 12, 2011 3:40 am

I know I'm gonna check out TOS and CTOS before I get angioplasty to rule out any outside pressure on the vein
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Postby munchkin » Thu May 12, 2011 5:39 am

I know I am excited that the technique is being tweaked and is looking very positive (thanks for sharing CeCe) for those people coming up. This is a huge advancement.

Is anyone looking at what can be done for those who have experienced these major issues with their veins? If we believe this procedure is beneficial to our health then we also believe that if we lose these veins we will be much worse.

On an aside, I think the endothelial heath program should be a first step prior to having the procedure done. If it makes the difference in how your veins will respond to the procedure than maybe some of these other issues will not be such a factor.
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