We must believe in CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

We must believe in CCSVI

Postby griff » Sat May 14, 2011 4:26 am

We must believe in CCSVI theory at least here in TIMS otherwise our threads will be deleted. It happened to mine couple times. Twice this morning. No offence had been made, only I raised the following issue:

"We all see our neurologists once or twice a year at least, so we get a status report at least once or twice a year. We usually get an MRI done once a year. If you do not get it, you can easily ask for it. It does not cost much compared to our operation. So, you got everything about your conditions pre and post operation. Please, post it and substantiate what you are stating. I would suggest that others do similarily before stating either improvements or deterioration. "

I also see that other threads have been locked that had been discussing pros and cons of CCSVI theory. On the other hand people can talk about big pharma conspiracy and nothing happens. So far I just wanted to get info on CCSVI, but now I have some concerns about the whole theory when I see lots of posts strongly pushing the theory and talking about improvements without any evidence, while those posts which try to present both sides of the argument are deleted or locked.
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Postby jimmylegs » Sat May 14, 2011 4:32 am

if you're posting about moderation it belongs in site support. please go read my reply to your earlier topic. we don't need to repeat this over again.
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Postby 1eye » Sat May 14, 2011 4:35 am

Give it a rest. She works pretty hard I would say, keeping up with this pandemonium. :)
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby griff » Sat May 14, 2011 4:39 am

jimmylegs wrote:if you're posting about moderation it belongs in site support. please go read my reply to your earlier topic. we don't need to repeat this over again.


Sorry, but I did not get any message to read and my whole thread was deleted. Can not we delete only those posts that are offensive and leave the thread untouched.
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Postby jimmylegs » Sat May 14, 2011 4:44 am

go to site support. read. thank you.
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Postby HappyPoet » Sat May 14, 2011 7:30 am

jimmylegs wrote:if you're posting about moderation it belongs in site support. please go read my reply to your earlier topic. we don't need to repeat this over again.

Exactly! griff is "standing on a soapbox" which is expressly forbidden at TIMS.
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Postby jimmylegs » Sat May 14, 2011 9:41 am

the rules announcement that appears at the top of every page of the CCSVI forum, can be found here:
http://www.thisisms.com/ftopict-12885.html

specifically:

"If you disagree with someone, please succintly state why and let it go at that. Point, counterpoint, counter-counter point, etc. is not useful-- the reality is that after the first disagreement, you will rarely convince another of something they feel strongly about unless you have shocking new information to share. The drawn-out debates also turn people off from reading the messages in the first place. If you really have to get something off your chest, please send that person a Private Message-- there is no need to have a long argument in public."

personally, i wish that people would respect this rule. i have no idea why we can't seem to have a balanced middle ground discussion.

as things currently stand (ie for 2+ years and counting), the culture of wilful misunderstanding and abuse from the vocal minority will continue to result in topics being shut down.
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