There are a lot of knowledgeable people on this forum, Cheerleader, Cece, Dr. Sclafani, others, some of whom will always respond to your pm.
Go local with someone you trust who knows a lot about CCSVI and is not prejudiced about it. Personally I would only accept the opinion of someone either trained in Ferrara or trained by a Ferrara trainee. That is a personal decision, but there is no magic to diagnosis of CCSVI. I have seen it done by several people and it is just a very subtle use of a complex piece of machinery. It is not a needle in a haystack, either.
You've just got to know exactly what to look for and how to find it. Angela, at Dr. MacDonald's lab, is very quick and thorough. I feel more comfortable in the hands of an MD, who has more background in anatomy and knows what is inside, in a more touchy-feely kind of way, but that is just me. I'm sure you can be very well trained, when it is so strictly controlled.
I am not clear on any recent revisions to what indicates CCSVI or not. Deep cerebral veins may be tricky, but if the right Doppler probe with a higher frequency of sound waves is necessary, that does not mean they should be ignored. That is not for this topic, I guess, but I think it is important.
Myself, my gut feel tells me that stuff higher up may be fixable by repairs lower down. I still want to know, now, and in future follow-ups, if I am having reflux that makes it high up. So I am glad to know about my deep cerebrals.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.