Cece wrote:The 'Summary of Predictors' is fascinating, you'd expect some of those to be predictive.
Arlene Hubbard's notes on the conference.
They invited every neurologist in the area. They had conference information in the Journal Neurology. Other than Dr. Hubbard and Dr. Burks, not one neurologist attended. A single one showed up, said to tell Dr. Hubbard he was there but then left and did not attend.
This angers me.....
It strikes me as neurologists being exceedingly closed off to any information on CCSVI, except perhaps the information that confirms their pre-existing ideas. That does not serve their patients' best interest.
David Hubbard discussed the Hubbard Foundation’s clinical outcomes study. 260 Patients pre and post venoplasty statistically significant using the MSIS.
66% overall improvement
The more sites treated the better the outcome
SPMS did less well that PPMS and RRMS
Duration of disease…no difference
Age, no difference
Women did better than men
Diet and lifestyle needs to be evaluated.
fMRI…movie of the brain
BOLD venous test….”tell time” test…looking at the function of several areas of the brain.pre venoplasty MS patients have less brain blood flow.
After venoplasty the brain blood flow normalizes.
Changes in the surging of blood in the brain occur the day after venoplasty.
This cannot be placebo
Hubbard foundation’s registry has been instrumental in collecting data on pwMS.
Every pt in our study has had abnormal valvular structures.
Left renal vein has been involved in most patients who did not have a response and when treated the patients got better.
50% of IRs believe in CCSVI and 88% of IR’s would have the tx if they had MS
Problems with treating ccsvi
We don’t know for sure what we are treating
We don’t know for sure how to treat it
Other than that, we have it all figured out
Too much hyperbole on the web
The treatment is very safe
Very high incidence of venous abnormalities in MS
No comment. I'm busy watching the videos.Cece wrote:...Too much hyperbole on the web?...
1eye wrote:No comment. I'm busy watching the videos.Cece wrote:...Too much hyperbole on the web?...
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