Hubbard Foundation Conference 2011 videos now online.

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hubbard Foundation Conference 2011 videos now online.

Postby CureIous » Sun May 15, 2011 4:58 pm

Sorry, thought this deserved it's own thread, plenty of stuff to watch, hopefully the rest of them get online too, nice work Hubbards!
Mark.

Since they are kind of disjointed in the youtube search results, here's a more orderly presentation of the individual videos:

Intro, Alexandra and Kirsty Duncan:
http://www.youtube.com/user/HubbFound#p/u/5/wbFU5w8KbQc
Kirsty Duncan part 2
http://www.youtube.com/watch?v=ghBhQSb5wl4
Kirsty Duncan part 3
http://www.youtube.com/watch?v=Exp0KghLPJ4

"Efficacy of venoplasty in MS" (good)
Dr. Ponec part 1 http://www.youtube.com/watch?v=eBuZyo3FJh0
Dr. Ponec part 2 http://www.youtube.com/watch?v=6wESi1SWMw4
Dr. Ponec part 3 http://www.youtube.com/watch?v=8nq2I8YRmVo&feature=mfu_in_order

"Catheter approaches" (good)
Dr. Saxon part 1 http://www.youtube.com/watch?v=AOB-5ZeHCYY
Dr. Saxon part 2 http://www.youtube.com/watch?v=_aBF49n2PvQ

"Neurovenous hypothesis and care" (really good)
Dr. Hubbard part 1 http://www.youtube.com/user/HubbFound#p/u/0/DhsuEoG5TJQ
Dr. Hubbard part 2 http://www.youtube.com/watch?v=Z1BP_xOQQlY
Dr. Hubbard part 3 http://www.youtube.com/watch?v=XnYi6IerCuo
Dr. Hubbard part 4 http://www.youtube.com/watch?v=Ie4IXrscM7M


Dr. Dake, keynote "CCSVI and MS, where do we go from here".
Dr. Dake part 1 http://www.youtube.com/watch?v=KnhSwbpCFHM
Dr. Dake part 2 http://www.youtube.com/watch?v=vKuUUCkw_-Q
Dr. Dake part 3 http://www.youtube.com/watch?v=cZRsbwMMp-8
Dr. Dake part 4 http://www.youtube.com/watch?v=RDPBdg5GaTk
Dr. Dake part 5 http://www.youtube.com/watch?v=GGVoefG6ZX8
Dr. Dake part 6 http://www.youtube.com/watch?v=A8rylGpX61M
Dr. Dake part 7 http://www.youtube.com/watch?v=Xp2aWE7W8_w
Last edited by CureIous on Sun May 15, 2011 6:18 pm, edited 2 times in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby CureIous » Sun May 15, 2011 5:02 pm

RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby CureIous » Sun May 15, 2011 7:24 pm

This was worth the effort, these are the screen-captured slides from Dr. Ponec's presentation. You'll find the 8.9% restenosis rate in there (#11), however I think that doesn't take all treated patients into account, IOW it's 8.9% of the total treated, but not all the treated people were rescanned so it could be more? Maybe someone can flesh that out from the video as I may be missing something there. Lotsa meat on the bone here regardless.

Anyways, here's the slides: (not all the slides are here, I left some out on purpose).

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Stick a fork in me I'm done, have a great week everyone! :)
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby CureIous » Sun May 15, 2011 7:28 pm

Dr. Jack Burks, don't want to miss this one either.

Part 1 http://www.youtube.com/watch?v=mNLk22n_rqQ
Part 2 http://www.youtube.com/watch?v=MrrUcYQcXLU
Part 3 http://www.youtube.com/watch?v=FhaFKbgLoTA

Part 4 http://www.youtube.com/watch?v=MMelCRTjkv8
Fast forward to 6:20 on Part 4, that's where he talks about the 27% pre-treatment relapse rate, vs. 100% post-treatment in the Zamboni study. From a logical perspective, he appears to be saying, "if only the restenosed people had relapses, then it should hover back down around the 27% it was prior to treatment, not 100%.
He also asks about any 2 year follow up on the Zamboni patients. Nothing particularly earth shattering, but some valid questions nonetheless. The slide at 9:40 is interesting too as it mentions the Hubbard fMRI results.

Part 5 http://www.youtube.com/watch?v=AmgI1ymhCMg

Part 6 this has the Q&A session at the end, where Sandy Mcdonald sets the record straight, make sure not to miss, it's quite interesting. Sandy is speaking starting at about 6:00
http://www.youtube.com/watch?v=Q3tV3r0o34Y (you may have to turn the volume up to hear him and listen carefully.
Last edited by CureIous on Sun May 15, 2011 9:31 pm, edited 6 times in total.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Cece » Sun May 15, 2011 7:33 pm

The 'Summary of Predictors' is fascinating, you'd expect some of those to be predictive.
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Postby CureIous » Sun May 15, 2011 8:27 pm

Cece wrote:The 'Summary of Predictors' is fascinating, you'd expect some of those to be predictive.


Yeah, I think these studies are going to become more inherently reliable as time goes on as the bugs are getting worked out. IOW there's less and less "missed stuff" that flys under the radar the first time around.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby Cece » Mon May 16, 2011 7:45 am

www.facebook.com/notes/arlene-pellar-hu ... 4524950517

Arlene Hubbard's notes on the conference.

They invited every neurologist in the area. They had conference information in the Journal Neurology. Other than Dr. Hubbard and Dr. Burks, not one neurologist attended. A single one showed up, said to tell Dr. Hubbard he was there but then left and did not attend.

This angers me.....
It strikes me as neurologists being exceedingly closed off to any information on CCSVI, except perhaps the information that confirms their pre-existing ideas. That does not serve their patients' best interest.
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Postby codefellow » Mon May 16, 2011 12:59 pm

Cece wrote:www.facebook.com/notes/arlene-pellar-hubbard/hubbard-foundation-first-annual-ccsvi-conference-51411/184314524950517

Arlene Hubbard's notes on the conference.

They invited every neurologist in the area. They had conference information in the Journal Neurology. Other than Dr. Hubbard and Dr. Burks, not one neurologist attended. A single one showed up, said to tell Dr. Hubbard he was there but then left and did not attend.

This angers me.....
It strikes me as neurologists being exceedingly closed off to any information on CCSVI, except perhaps the information that confirms their pre-existing ideas. That does not serve their patients' best interest.



Gotta say I agree with you on this one, Cece. Even the most vocal and adamant skeptics on this forum are not so closed-minded as to IGNORE information collected by respected medical professionals. I mean, it is one thing for a doctor to ignore something a patient read about on the internet, but both the neurologists and the IR's have degrees in medicine. Should they not at least have respect for each other's opinions?
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Re: Hubbard Foundation Conference 2011 videos now online.

Postby Cece » Fri Jun 01, 2012 6:03 am

This is an old thread, but some good information in it, and I was looking for a place to add Arlene Hubbard's notes from the 2012 Hubbard Foundation Conference. (And forgive me if it has already been posted! I hadn't looked at it closely before.)
www.facebook.com/permalink.php?story_fb ... 9665829860
David Hubbard discussed the Hubbard Foundation’s clinical outcomes study. 260 Patients pre and post venoplasty statistically significant using the MSIS.
66% overall improvement

The more sites treated the better the outcome
SPMS did less well that PPMS and RRMS
Duration of disease…no difference
Age, no difference
Women did better than men
Diet and lifestyle needs to be evaluated.

We've heard this elsewhere as well. I would have expected duration of disease or age to make a difference, and it did not. I would have expected PP MS to fare the worst, and it was SP MS that did, but these are not stats to dispair over: A majority of people with SP MS still improved. The more sites treated, the better the outcome is an interesting one. It could be that those with fewer sites treated had stenoses that were missed and went untreated, or they had complicated presentations such as hypoplasias, that cannot be easily treated, or that the treatment of more sites freed up more blood flow allowing for more pronounced improvements.
fMRI…movie of the brain
BOLD venous test….”tell time” test…looking at the function of several areas of the brain.pre venoplasty MS patients have less brain blood flow.
After venoplasty the brain blood flow normalizes.
Changes in the surging of blood in the brain occur the day after venoplasty.
This cannot be placebo

That last one is worth repeating: This cannot be placebo.
Hubbard foundation’s registry has been instrumental in collecting data on pwMS.
Every pt in our study has had abnormal valvular structures.

Every patient. 100%. That's either specificity or sensitivity (ack which one) and it suggests that CCSVI may be causal to MS.
Left renal vein has been involved in most patients who did not have a response and when treated the patients got better.

An interesting statement! A good reason to check the left renal vein at the time of the first procedure, and not let patients go out and fail to have improvements and not know why.
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Re: Hubbard Foundation Conference 2011 videos now online.

Postby Cece » Fri Jun 01, 2012 6:10 am

from Dr. Ponec at the 2012 conference:
50% of IRs believe in CCSVI and 88% of IR’s would have the tx if they had MS

Wonder what the stats are for neurologists. It's interesting that the percentage of IRs who would have the treatment if they had MS is greater than the percentage of IRs who believe in CCSVI. The first question is black/white, yes/no; and the second question is what have you got to lose, take a gamble, shades of unknown gray. Sorry for that not being very clearly said, it is still early today.
Problems with treating ccsvi
We don’t know for sure what we are treating
We don’t know for sure how to treat it
Other than that, we have it all figured out

Rather humorous. :)
Too much hyperbole on the web
The treatment is very safe
Very high incidence of venous abnormalities in MS

Too much hyperbole on the web? I've accused the neurologists of hyperbole, and of fanning flames, etc. I don't want us to be guilty of it as well.
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Re: Hubbard Foundation Conference 2011 videos now online.

Postby 1eye » Fri Jun 01, 2012 2:13 pm

Cece wrote:...Too much hyperbole on the web?...
No comment. I'm busy watching the videos. 8) :wink:
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Re: Hubbard Foundation Conference 2011 videos now online.

Postby Cece » Fri Jun 01, 2012 3:32 pm

1eye wrote:
Cece wrote:...Too much hyperbole on the web?...
No comment. I'm busy watching the videos. 8) :wink:

Remember these are the videos from 2011. I don't think there are any out yet for 2012.
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