CCSVI foundation sends three patients for treatment

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI foundation sends three patients for treatment

Postby Cece » Mon May 16, 2011 2:10 pm

www.thebarrieexaminer.com/ArticleDisplay.aspx?e=3124930
Garvie's organization is helping to send three people to Providence, Rhode Island to have the treatment done June 15 – a set of twins from Parry Sound – one of whom requires an ambulance transfer - and a Barrie man.

Kudos to Mr. Garvie and CCSVI Foundation! This directly helps three patients, one of whom has upper level EDSS.

Here is where to find out more about the CCSVI Foundation and to donate:
www.ccsvifoundationcanada.org/donations

Or if you are Canadian to apply for assistance with funding your CCSVI treatment:
www.ccsvifoundationcanada.org/applicati ... assistance
It's worth a shot.
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Advertisement

Postby Cece » Tue Jul 05, 2011 7:53 am

Here's a report on how the first patient assisted by the CCSVI Foundation to receive CCSVI treatment is doing!

www.simcoe.com/opinion/editorial/articl ... right-step

More recently, and through Garvie’s newly created CCSVI Foundation, Mike Tkachuk travelled to Rhode Island for the surgery.
“People can see my recovery, they can’t deny it,” he told The Advance. “ The Monday after my surgery I went back to work and the guys couldn’t believe how good it was.”


www.simcoe.com/news/article/1038312--sm ... ms-patient
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Postby Cece » Tue Jul 05, 2011 8:21 am

www.simcoe.com/news/article/1038312--sm ... ms-patient
While on the operating table, Tkachuk said he was able to stretch out his leg. “My calf muscles have been locked and while on the recovery table, I was able to stretch my legs like a kid. With no pain.”
Once back in Barrie, Tkachuk said he ran from the car in the parking lot. It was the first time he’s run for 10 years.

Tkachuk now leaves his cane behind on walks, and said he tackles the stairs with greater ease.

Normally, he went down the stairs by tediously placing two feet on each step for balance, while hanging onto the handrail. Now, Tkachuk can take his dog for a walk, holding only the leash and stepping forward on the stairs, one foot on each step.
“People can see my recovery, they can’t deny it,” he said. “The Monday after my surgery I went back to work and the guys couldn’t believe how good it was.
“There are small things I can do physically I couldn’t do before. I know I’m not a burden anymore. I can participate and be there.”

Serious congrats and kudos to Mr. Tkachuk and to Steve Garvie and the CCSVI Foundation.
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Postby Blaze » Tue Jul 05, 2011 11:12 am

Steve Garvie of CCSVI Foundation was one of six people treated by Dr. McDonald and Dr. Guest in Barrie last year before the good docs were directed by College of Physicians and Surgeons to stop.

Steve was in a wheelchair and needed assistance to dress, bathe, etc. He is now walking, living independently, working full time and is the founder of CCSVI Foundation to help other Canadians get treatment. He has also testified before Parliament along with Dr. McDonald and Dr. Haacke. Steve has said he has "energy to burn."

In addition to Rhode Island, CCSVI Foundation has helped some people go to California.

Amazing man. Amazing group.
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Postby KateCW » Tue Jul 05, 2011 8:08 pm

I just googled Steve Garvie and read his blurb about the liberation treatment. While he was receiving some care and support he said nothing about being in a wheelchair and was still working.he does feel he has benefitted from the procedure though.

Lets be careful about making these types of statements. I AM in a wheelchair/scooter and know of no one who has walked away from a chair after CCSVI surgery. Believe me, I keep looking, phoning people I hear of through friends. etc.
We don't need false hope, we need the accurate truth.
Kathy, 49 with PPMS,full time scooter.
Married to a wonderful man, mother to a darling 9 yr old boy
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Postby drbart » Tue Jul 05, 2011 11:51 pm

KateCW wrote:Lets be careful about making these types of statements. I AM in a wheelchair/scooter and know of no one who has walked away from a chair after CCSVI surgery. Believe me, I keep looking, phoning people I hear of through friends. etc.
We don't need false hope, we need the accurate truth.


Didn't Mammananny AKA Linda show exactly this in her before/after videos?

http://www.youtube.com/watch?v=4WG8WviAZuo

Before: Got up from scooter, fell down.
After: Walked briskly back&forth, "I'm bending my knees!"

Before: Right eye unable to track to the right.
After: Right eye fully tracks.

To me this was one of the most striking before/after videos, in that she had this eye-tracking problem for a very long time, like 15 years, yet it was resolved immediately upon treatment.

Clearly there was neural tissue not completely dead, but somehow compromised for a very very long time. I still have no understanding of how this could be.

Re scooters/wheelchairs, the most improvement I have personally seen is people throwing away their canes. Not dramatically so as in dancing like Gene Kelly, but comfortably able to do without.
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Postby Cece » Wed Jul 06, 2011 7:27 am

www.liberationtreatment.com/steve-garvi ... treatment/

Here's Steve Garvie's story in his own words. It sounds like he had a wheelchair but was able to stand if assisted and use a walker.

The government program (Simcoe County Association for the Physically Disabled) also sounds remarkable. Society needs safety nets like that, thank goodness they are there.

btw I'd never seen Mammananny's video before. Wow.
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