Neuromyelitis Optica

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Neuromyelitis Optica

Postby DrCumming » Mon May 16, 2011 5:01 pm

Hi all,

My turn to ask for help!

http://www.ninds.nih.gov/disorders/neur ... optica.htm

Has anyone heard anything about CCSVI being or not being present in these patients?
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Postby Cece » Mon May 16, 2011 6:47 pm

According to Zivadinov, high prevalence of CCSVI in NMO.

www.sciencenewsline.com/medicine/2011041413000020.html

MS patients also were defined by disease type: relapsing-remitting (RR), secondary progressive (SP), primary-progressive (PP), progressive-relapsing (PR) and MS with neuromyelitis optical (NMO) -- a type of MS that affects the optic nerves and spinal cord exclusively.
The highest prevalence was seen in relapsing primary-progressive MS (89.4 percent), followed by non-relapsing secondary-progressive MS (67.2 percent), NMO (66.6 percent), primary-progressive MS (54.5 percent) and relapsing-remitting MS (49.2 percent). CCSVI prevalence was substantially higher in progressive MS than in non-progressive MS patients. In addition, patients with a progressive MS disease subtype had higher CCSVI prevalence than those with non-progressive MS.
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Postby DrCumming » Mon May 16, 2011 6:54 pm

Cece wrote:According to Zivadinov, high prevalence of CCSVI in NMO.

www.sciencenewsline.com/medicine/2011041413000020.html

MS patients also were defined by disease type: relapsing-remitting (RR), secondary progressive (SP), primary-progressive (PP), progressive-relapsing (PR) and MS with neuromyelitis optical (NMO) -- a type of MS that affects the optic nerves and spinal cord exclusively.
The highest prevalence was seen in relapsing primary-progressive MS (89.4 percent), followed by non-relapsing secondary-progressive MS (67.2 percent), NMO (66.6 percent), primary-progressive MS (54.5 percent) and relapsing-remitting MS (49.2 percent). CCSVI prevalence was substantially higher in progressive MS than in non-progressive MS patients. In addition, patients with a progressive MS disease subtype had higher CCSVI prevalence than those with non-progressive MS.


Thanks! I thought you might come to the rescue :)
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Postby MegansMom » Mon May 16, 2011 7:03 pm

That sign & symptom list sure does reek of CCSVI !
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My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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Postby 1eye » Mon May 16, 2011 7:19 pm

Didn't Dr. Dake show some slides of NMO veins? I seem to recall there being some relation there.
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Postby 1eye » Mon May 16, 2011 7:32 pm

I wonder if the prevalence number goes down significantly if you do not distinguish between any 'MS'/CCSVI types.
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Postby Loobie » Tue May 17, 2011 4:06 am

If it's there, it's there in transverse myelitis, which is the 'myelitis' part of NMO. This is what my dx was for years. The japanese don't discriminate. To them, NMO is called Optico Spinal Multiple Sclerosis.
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