This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 4:13 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 7 posts ] 
  Print view Previous topic | Next topic 
Author Message
DrCumming
 Post subject: Neuromyelitis Optica
PostPosted: Mon May 16, 2011 5:01 pm 
Offline
Family Elder
User avatar

Joined: Sat Dec 25, 2010 4:00 pm
Posts: 209
Location: Minneapolis, MN
Hi all,

My turn to ask for help!

http://www.ninds.nih.gov/disorders/neur ... optica.htm

Has anyone heard anything about CCSVI being or not being present in these patients?
Top
 Profile  
 
Cece
 Post subject:
PostPosted: Mon May 16, 2011 6:47 pm 
Offline
Family Elder

Joined: Mon Jan 04, 2010 4:00 pm
Posts: 8508
According to Zivadinov, high prevalence of CCSVI in NMO.

www.sciencenewsline.com/medicine/2011041413000020.html

Quote:
MS patients also were defined by disease type: relapsing-remitting (RR), secondary progressive (SP), primary-progressive (PP), progressive-relapsing (PR) and MS with neuromyelitis optical (NMO) -- a type of MS that affects the optic nerves and spinal cord exclusively.
Quote:
The highest prevalence was seen in relapsing primary-progressive MS (89.4 percent), followed by non-relapsing secondary-progressive MS (67.2 percent), NMO (66.6 percent), primary-progressive MS (54.5 percent) and relapsing-remitting MS (49.2 percent). CCSVI prevalence was substantially higher in progressive MS than in non-progressive MS patients. In addition, patients with a progressive MS disease subtype had higher CCSVI prevalence than those with non-progressive MS.


Top
 Profile  
 
DrCumming
 Post subject:
PostPosted: Mon May 16, 2011 6:54 pm 
Offline
Family Elder
User avatar

Joined: Sat Dec 25, 2010 4:00 pm
Posts: 209
Location: Minneapolis, MN
Cece wrote:
According to Zivadinov, high prevalence of CCSVI in NMO.

www.sciencenewsline.com/medicine/2011041413000020.html

Quote:
MS patients also were defined by disease type: relapsing-remitting (RR), secondary progressive (SP), primary-progressive (PP), progressive-relapsing (PR) and MS with neuromyelitis optical (NMO) -- a type of MS that affects the optic nerves and spinal cord exclusively.
Quote:
The highest prevalence was seen in relapsing primary-progressive MS (89.4 percent), followed by non-relapsing secondary-progressive MS (67.2 percent), NMO (66.6 percent), primary-progressive MS (54.5 percent) and relapsing-remitting MS (49.2 percent). CCSVI prevalence was substantially higher in progressive MS than in non-progressive MS patients. In addition, patients with a progressive MS disease subtype had higher CCSVI prevalence than those with non-progressive MS.


Thanks! I thought you might come to the rescue :)
Top
 Profile  
 
MegansMom
 Post subject:
PostPosted: Mon May 16, 2011 7:03 pm 
Offline
Family Elder
User avatar

Joined: Sun Aug 22, 2010 3:00 pm
Posts: 200
Location: Central FL ( near Ocala)
That sign & symptom list sure does reek of CCSVI !

_________________
Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
Top
 Profile  
 
1eye
 Post subject:
PostPosted: Mon May 16, 2011 7:19 pm 
Offline
Family Elder
User avatar

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2565
Location: Kanata, Ontario, Canada
Didn't Dr. Dake show some slides of NMO veins? I seem to recall there being some relation there.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
Top
 Profile  
 
1eye
 Post subject:
PostPosted: Mon May 16, 2011 7:32 pm 
Offline
Family Elder
User avatar

Joined: Wed Mar 17, 2010 4:00 pm
Posts: 2565
Location: Kanata, Ontario, Canada
I wonder if the prevalence number goes down significantly if you do not distinguish between any 'MS'/CCSVI types.

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
Top
 Profile  
 
Loobie
 Post subject:
PostPosted: Tue May 17, 2011 4:06 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 11, 2006 3:00 pm
Posts: 2197
Location: Dayton, Ohio USA
If it's there, it's there in transverse myelitis, which is the 'myelitis' part of NMO. This is what my dx was for years. The japanese don't discriminate. To them, NMO is called Optico Spinal Multiple Sclerosis.

_________________
http://myhopefuljourneyintoactualmsreco ... ogspot.com
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 7 posts ] 

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Who is online

Users browsing this forum: tonya

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: