I'd like to talk a bit about my MS/CCSVI story.
I had only one procedure done almost 16 mnths ago. My vein is still OK. For over 2 years I have been relapse free. 4 mnths ago I decided to go off Tysabri (after 2 years of taking it). I was diagnosed 10 years ago. My EDSS is 4.
I am not sure what is going to happen, but now I feel stability. I am not cured of my symptoms, but i think the more i am relapse free the bigger chance for some improvements. We will see. So far, so good.
Polish, 30yrs, dx 2000 RRMS, EDSS 5.
liberated in february the 2nd 2010:). Currently on double blind clinical trial with Avonex/Daclizumab.