Hi new here, have question about CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Hi new here, have question about CCSVI

Postby AshNight » Sat May 21, 2011 6:20 am

Everytime I search about MS or watch youtube videos there all these spammers condoning CCSVI as the real cure/treatment for MS. However isnt MS an autoimmune disease? I have heard of ppl doing so much better after taking cancer drugs like campath or rituxman etc.

Also can my optic neuritis and the dymeylenation of my optic nerve be caused by veinous insufficiency? I guess I can buy that disability might be caused by low blood circulation but what about the optic nerve?
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Postby dania » Sat May 21, 2011 7:50 am

Wecome Ash. First as to MS being an autoimmune disease, that is ONLY a theory. It has NEVER been proven. Read this
http://www.facebook.com/ccsvi.ms.toront ... 2191932211
I personally know woman who lives in the same town as me that has optic neuritis, had the procedure and here eyesight improved. This was verified by her opthalmologist, who was quite surprised.
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Postby Cece » Sat May 21, 2011 7:57 am

The veins that drain the eye drain into the jugulars. In my case, one jugular was 100% blocked and one was 80% blocked. Like the person dania mentions, I too surprised my optometrist afterwards because my prescription had improved. I've only heard of new prescriptions in three cases, so that might not be a common outcome. I am grateful.

My understanding of CCSVI is that there is an immune component to the disease still but instead of autoimmune it is the immune system naturally attacking the dead and dying deoxygenated, iron laden oligodendrocytes and neurons; also the bad blood flow weakens the endothelium which allows white blood cells through to access the brain.

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Postby AMcG » Sat May 21, 2011 9:37 am

Hello Ashnight

The veins which are damaged by the compromised outflow from the brain in CCSVI are called the deep cerebral veins. They drain the area deep in the brain around the thalamus and hypothalamus. The optic nerves run through the thalamus on their way to the visual cortex. So they would be susceptible to damage in the same way.

The other way your eyes may be affected by CCSVI is like Cece said: poor flow thru the jugulars compromising outflow from the eyes.

Improvements in eyesight are sometimes reported when CCSVI is treated.
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Postby happy_canuck » Tue May 24, 2011 11:28 am

Hi folks,

Well, some researchers in Texas are currently recruiting for a CCSVI study looking at whether they can find CCSVI through an eye examination:

http://www.facebook.com/CCSVI.BC#!/note ... 0828907734

The eyes, with their incredible vasculature, seem ripe for effects of venous hypertension and other ills theorized to accompany CCSVI.

These researchers are also looking at whether CCSVI can be found in Ehlers Danlos Syndrome -- see link for more info.

If you live nearby in Texas, it mght be worthwhile to take a look and see if you can participate!

~Sandra
National CCSVI Society: <strong><br /><a href="http://tinyurl.com/44znbct">http://tinyurl.com/44znbct</a> ~Website<br /><a href="http://tinyurl.com/3wzmkmg">http://tinyurl.com/3wzmkmg</a> ~Facebook</strong><br />
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Re: Hi new here, have question about CCSVI

Postby Donnchadh » Tue May 24, 2011 1:20 pm

AshNight wrote:Everytime I search about MS or watch youtube videos there all these spammers condoning CCSVI as the real cure/treatment for MS. However isnt MS an autoimmune disease? I have heard of ppl doing so much better after taking cancer drugs like campath or rituxman etc.

Also can my optic neuritis and the dymeylenation of my optic nerve be caused by veinous insufficiency? I guess I can buy that disability might be caused by low blood circulation but what about the optic nerve?


Whether or not MS is caused by some poorly defined auto-immune response (to a yet to be discovered virus?) or as a result of venous disorders has been hotly debated here.

Some of the auto-immune theory supporters frequently just dismiss any patient reports of post-op CCSVI treatments as merely "placebo" and not scientifically proven.

I suggest you read the numerous postings (pro and con) and decide for yourself.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
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