A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby Chrystal » Fri May 27, 2011 9:19 am

:) Glad the links worked, 1eye!! BTW, I agree, "Computers....sheeeesh!!

Take care and keep well.
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Postby 1eye » Sat May 28, 2011 9:32 pm

Bump again:

Seems some on FB and maybe here don't understand proxy votes. They are legal forms you fill out and sign, naming someone to vote in your place, when you can't get to the election.

The form supplied by the MS Society, is already supplied with the name(s) of someone they want to have your vote. Do not use this one.

The form supplied here: http://ccsvicoalition.org/wp-content/uploads/Proxy_May_11_2011.pdf is supplied with different names, of people who support the CCSVI procedure. Use this one.

If you are an MS Society member and can't make it to vote at the Annual General Meeting, and don't like the way they have been advising the governments of Canada, fill in and fax, mail, or scan-and-email this form.
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Postby Chrystal » Sun May 29, 2011 3:25 pm

It seems that my posting the CCSVI Coalition appeal has created some upset on Facebook (with some wondering if CC is working with the MSSC, etc., etc.,) , and for this I am truly sorry.

For the record, I am not on the CCSVI Coalition commitee, but I was happy to post their appeal because:

- I knew them as the Blocked Veins MS Research Group

- they are pro-CCSVI

- many of them were present at last year’s AGM in Toronto asking very tough questions of the MSSC and trying to pin them down to answers (to the point where the Chair shut down the AGM rather than answer a question)

- they have represented pro-CCSVI voices on the MSSC’s CCSVI Working Committee

- *** I was told that they are introducing resolutions at the MSSC AGM and would need MSers’ votes/proxy votes in order to have these resolutions passed. I fully support any new resolutions that would rein in the MSSC, as well as demand transparency and accountability

- as we work with other specifically focused CCSVI organizations in this fight, I believe we do need to have an arm - hopefully with a tightening chokehold on the self-serving MSSC.


Regarding the 3-month waiting period for voting rights:

In advance of the April 3, 2011 AGM, I did post a question on the MSSC f/b site asking Rob (the administrator) the following:

Rob, has the MSSC ever had the following stipulations before?
If so, when?
If not, why now?

"To be entitled to vote at the AGM a member shall have been a member in good standing for at least the three-month period preceding the date of the AGM. Members in attendance at the AGM are required to provide photo identification."

Notice of AGM of Members:
(Page 7 or 8)

Sheraton Gateway Hotel at Toronto Pearson International Airport, Terminal Three, Toronto, ON
April 3, 2011 at 11:15am


Rob responded to the effect that each Chapter/Division has their own rules (and can introduce/change rules at any time) about the length of time one must be a member before being eligible to vote, etc.

The following is my own Chapter’s Membership form and it didn’t mention length of time before eligibility to vote.
https://msors.mssociety.ca/CATv2/PDFs/C ... newal_Form[1].pdf


I was glad to read a comment from Johnny Lucas (of CC), stating thtat they will be addressing this issue. The MSSC solicits funds while claiming to represent ALL Canadians living with MS, and yet there is a "holding" period before MSers can have their voice heard at the MSSC AGM via votes/proxy votes???

Is there the same waiting period for newly hired staff or are they automatically eligible to vote? BTW, I hope this is being addressed too, it is unethical for paid staff to be allowed to vote. It seems that to date, only paid staff has had a louder voice than actual MSers.

For those who do not wish to participate in the above, and who have withdrawn their membership, please do the following as suggested by a wise fellow MSer:

Please make sure that the MSSC has removed you from all their lists and that they are not including you in the number of MSers they claim to represent while soliciting funds. One would hope that this would be an automatic practice upon withdrawal of membership, but hopefully an official letter stating these wishes will guarantee this.
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Postby Blaze » Sun May 29, 2011 3:47 pm

Chrystal, I saw your post (and that of bohemianbill in another thread on this topic) for the very purposes you have stated. I don't know why someone would interpret it any differently.

I'm sorry if you were subjected to criticisms for trying to make a difference with MSS.

Thanks for bringing this forward. I faxed my proxy to Janet last week.
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Postby Chrystal » Sun May 29, 2011 7:57 pm

Hello Blaze,

Thank you so much for your kind message, I appreciate it. No criticisms, just upset comments. I felt badly for possibly causing this upset and wanted people to understand my reasons for posting the appeal, which I also stand by :).

Thank you so much for sending in your proxy to Janet Heisey!!

Take care and keep well.

P.S. Thanks again for your kind message, Blaze.



I didn't post this in case you have any reason you wouldn't want me to, but go ahead if you want...:

My browser is at fault. I suggest if anyone is having this problem they use Internet Explorer, just this once, which seemed to work for me, or use the following cut-and-pasted version. Please print just the part between the asterisks and fill it out by hand and mail it in, scan it and email it, or fax it in.


Multiple Sclerosis Society of Canada Proxy for Annual Meeting of Members
June 18, 2011

The undersigned hereby appoints Janet Heisey, or failing her Johnny Lucas or

_______________________________________________ as proxy with power of substitution, to attend and to vote for the undersigned at the Annual Meeting of members to be held on Saturday June 18, 2011 and at any adjournment or adjournments thereof and to vote and otherwise act
thereat for and on behalf and in the name of the undersigned in respect of all matters which may come before the meeting in the same manner the undersigned would do if personally present thereat.

Dated this ________ day of ________________ 2011

SIGNATURE: ____________________________

Please print clearly your name address and telephone number:

Surname:______________________ Middle Initial: _____ Given Name: ____________________

Street Address: ___________________ Town/City:_______________

Province: ___________________ Postal Code: _____________ Phone

Number: _______________

MS Society Division/ Chapter/Unit (if known): _____________

Janet Heisey, CCSVI Coalition, 67 South Drive, Toronto, Ontario, M4W 1R4
email a scanned copy to: info@CCSVICoalition.org
fax to: 1-888-640-3620

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Postby Chrystal » Sun May 29, 2011 8:04 pm

I just wanted to clarify. The upset has to do with the MSSC and the great distrust MSers have of this organization. They feel there is no hope of changing anything because the MSSC makes up their own rules and change them at will. Even regarding votes, MSers have no confidence that our votes/proxy votes will even count.
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