Brooklyn-bound

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby CD » Mon May 23, 2011 10:27 pm

Wishing you both the best. I pray improvements come fast, and last forever. Heal and be well.
CD
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 3:00 pm
Location: USA

Advertisement

Postby KikiT » Tue May 24, 2011 5:31 am

My prayers and wishes for you are for lasting, great improvements.....Really!
My turn in 2 weeks.
User avatar
KikiT
Family Member
 
Posts: 55
Joined: Tue Oct 13, 2009 2:00 pm

Postby NormB » Tue May 24, 2011 8:23 am

NormB wrote:Hi Jonhson,
Today Monday, I was the patient just before you. I was set for 10:30 am but the previous and the first patient got out at 12:30 pm


Sorry Johnson you were the first patient of the day and I came in second.
Apparently It was a challenge for Dr Sclafini as it took over 4hrs.
Hoping to hear from you.

Normb
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
User avatar
NormB
Family Elder
 
Posts: 115
Joined: Thu Jan 07, 2010 3:00 pm
Location: Near Ottawa Canada

Postby PCakes » Tue May 24, 2011 8:31 am

NormB wrote:Sorry Johnson you were the first patient of the day and I came in second.
Apparently It was a challenge for Dr Sclafini as it took over 4hrs.
Hoping to hear from you.
Normb


4 hours... 8O !
NJ.. sure hope to hear from you soon!
User avatar
PCakes
Family Elder
 
Posts: 849
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada

Postby Cece » Tue May 24, 2011 8:36 am

Makes me wonder who holds the record for longest procedure. (Shortest procedure, not by Dr. Sclafani, comes in under 30 minutes....)

Not every doctor would spent four hours on one patient. I am hoping the effort translates to durable, thorough, excellent results.

Not Johnson, hope to hear from you soon!!
Cece
Family Elder
 
Posts: 9039
Joined: Mon Jan 04, 2010 3:00 pm

Postby HappyPoet » Tue May 24, 2011 4:56 pm

While waiting, we worry, want, wish, wave, and watch wondering when, wondering where you will whisper, warble, or whistle welcomed words of waning woes and warming toes. :)

[Not J, w=21-1]
User avatar
HappyPoet
Family Elder
 
Posts: 1401
Joined: Thu Jul 09, 2009 2:00 pm

Postby CD » Tue May 24, 2011 7:05 pm

So, how are you doing Normb? What was done and how are you feeling? Was this a first time procedure for you? Details please unless you posted them elsewhere, or choose not to discuss it with us, that is fine too. :)

I just hope you are well, and so is Not Johnson. Maybe we will hear from him soon. He is either resting or perhaps out eating or shopping, you never know.

I hope he is fine. He had to travel back to Canada with his wife and four year old.

Normb when do you go back home? Will you stay in B'klyn a few days?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

FWIW: My first procedure was three hours in Albany Medical Center Hospital. My second was about one hour in CC Clinic, both in Albany, NY. Both performances were by the same Dr. :wink:
CD
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 3:00 pm
Location: USA

Postby NormB » Tue May 24, 2011 7:52 pm

Hi CD and everyone,
This was my second procedure here in Broolyn,
IVUS was used troughout and Dr. S performed 3 balloonings. The results soon afterwards were very good but the next morning was not encouraging. Feels the same as before the procedure with the exeption that my lower back pain is gone. My first procedure late last fall was with very good instantaneous results with more energy for standing and walking and all this with only one ballooning in my left jugular. That one ballooning was very painful but the three I had Monday were barely noticeable on the pain scale. At this point I'm left to hope that I will have a gradual improvement over the next few months. The procedure lasted 3 hrs this time. I have to say that I still feel that Dr Sclafani is #1 in my book. My flight back to Ottawa Canada is booked on Thursday pm. Stuck here at Hotel Lebleu till then. Btw thanks for asking. I find it weird that no news from Not Johnson is forthcoming. I'll try tomorrow to find out why.
Thanks for keeping up with my dialect difference, I'm pure bred french.

Take Care All

Normb
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
User avatar
NormB
Family Elder
 
Posts: 115
Joined: Thu Jan 07, 2010 3:00 pm
Location: Near Ottawa Canada

Postby CD » Tue May 24, 2011 8:46 pm

NormB, will you be having another Ultrasound test before you go home to Canada? Is aftercare available to you at home?

I hope you see tons of improvements. :)
CD
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 3:00 pm
Location: USA

Postby NormB » Wed May 25, 2011 2:02 am

Hi CD
This is a good question concerning the US I'll check on that.
Back in Canada there is a US facility and it is 300 miles from my residence, my date is set for next July 13.

Normb
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
User avatar
NormB
Family Elder
 
Posts: 115
Joined: Thu Jan 07, 2010 3:00 pm
Location: Near Ottawa Canada

Postby Needled » Wed May 25, 2011 6:54 am

NormB wrote:
Feels the same as before the procedure with the exeption that my lower back pain is gone.

Hey Norm, My lower back pain of 5 years also disappeared. All of my doctor's said it wasn't connected to MS. My first procedure w/Dr. S. in February 2010 had no affect on my back. My second procedure a few weeks ago improved my back dramatically. I don't want to hi-jack Not Johnson's thread so I'll ask about it on DSASQ. Just wanted to mention it here first.
Not Johnson, Waiting and wishing you well. Hope to hear from you soon.
User avatar
Needled
Family Elder
 
Posts: 361
Joined: Wed Jan 14, 2009 3:00 pm
Location: Connecticut

Postby NormB » Wed May 25, 2011 12:18 pm

Hi people,
Dr. S arranged for a US which I just returned from.
Everything seem normal according to the tech. So I guess we'll just let time pass and see how it will transpire. Have to say again Dr Sclafani and his team are numero uno. We're leaving tomorrow back home. Going to miss the great food here.

Take Care All

Normb
'92 diag RR - '05 SP
On LDN since Sept. 2012 with better quality of life.
User avatar
NormB
Family Elder
 
Posts: 115
Joined: Thu Jan 07, 2010 3:00 pm
Location: Near Ottawa Canada

Postby prairiegirl » Wed May 25, 2011 1:37 pm

Thanks for your report NormB-- look forward to your updates when you are home.
I also hope we hear from you soon, NJ-- best to both of you in your travels back to Canada (west and east!) and in seeing improvements in time.
User avatar
prairiegirl
Family Elder
 
Posts: 228
Joined: Fri Feb 05, 2010 3:00 pm

Postby Cece » Thu May 26, 2011 5:37 am

Has anyone heard from Johnson?
Cece
Family Elder
 
Posts: 9039
Joined: Mon Jan 04, 2010 3:00 pm

Postby PCakes » Thu May 26, 2011 6:04 am

no :?
...and i'm hoping he's laying low getting some doc ordered rest after a long procedure with nothing but good results.
User avatar
PCakes
Family Elder
 
Posts: 849
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service