This Is MS Multiple Sclerosis Community: Knowledge & Support

Wishing you both the best. I pray improvements come fast, and last forever. Heal and be well.
CD

_________________
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010

My prayers and wishes for you are for lasting, great improvements.....Really!
My turn in 2 weeks.

Sorry Johnson you were the first patient of the day and I came in second.
Apparently It was a challenge for Dr Sclafini as it took over 4hrs.
Hoping to hear from you.

Normb

_________________
In a perfect world, my Neuro would like to be a vascular specialist.
'92 diag RR - '05 SP

4 hours... !
NJ.. sure hope to hear from you soon!

Makes me wonder who holds the record for longest procedure. (Shortest procedure, not by Dr. Sclafani, comes in under 30 minutes....)

Not every doctor would spent four hours on one patient. I am hoping the effort translates to durable, thorough, excellent results.

Not Johnson, hope to hear from you soon!!

While waiting, we worry, want, wish, wave, and watch wondering when, wondering where you will whisper, warble, or whistle welcomed words of waning woes and warming toes.

[Not J, w=21-1]

So, how are you doing Normb? What was done and how are you feeling? Was this a first time procedure for you? Details please unless you posted them elsewhere, or choose not to discuss it with us, that is fine too.

I just hope you are well, and so is Not Johnson. Maybe we will hear from him soon. He is either resting or perhaps out eating or shopping, you never know.

I hope he is fine. He had to travel back to Canada with his wife and four year old.

Normb when do you go back home? Will you stay in B'klyn a few days?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

FWIW: My first procedure was three hours in Albany Medical Center Hospital. My second was about one hour in CC Clinic, both in Albany, NY. Both performances were by the same Dr.
CD

_________________
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010

Hi CD and everyone,
This was my second procedure here in Broolyn,
IVUS was used troughout and Dr. S performed 3 balloonings. The results soon afterwards were very good but the next morning was not encouraging. Feels the same as before the procedure with the exeption that my lower back pain is gone. My first procedure late last fall was with very good instantaneous results with more energy for standing and walking and all this with only one ballooning in my left jugular. That one ballooning was very painful but the three I had Monday were barely noticeable on the pain scale. At this point I'm left to hope that I will have a gradual improvement over the next few months. The procedure lasted 3 hrs this time. I have to say that I still feel that Dr Sclafani is #1 in my book. My flight back to Ottawa Canada is booked on Thursday pm. Stuck here at Hotel Lebleu till then. Btw thanks for asking. I find it weird that no news from Not Johnson is forthcoming. I'll try tomorrow to find out why.
Thanks for keeping up with my dialect difference, I'm pure bred french.

Take Care All

Normb

_________________
In a perfect world, my Neuro would like to be a vascular specialist.
'92 diag RR - '05 SP

NormB, will you be having another Ultrasound test before you go home to Canada? Is aftercare available to you at home?

I hope you see tons of improvements.
CD

_________________
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010

Hi CD
This is a good question concerning the US I'll check on that.
Back in Canada there is a US facility and it is 300 miles from my residence, my date is set for next July 13.

Normb

_________________
In a perfect world, my Neuro would like to be a vascular specialist.
'92 diag RR - '05 SP

NormB wrote:
Hey Norm, My lower back pain of 5 years also disappeared. All of my doctor's said it wasn't connected to MS. My first procedure w/Dr. S. in February 2010 had no affect on my back. My second procedure a few weeks ago improved my back dramatically. I don't want to hi-jack Not Johnson's thread so I'll ask about it on DSASQ. Just wanted to mention it here first.
Not Johnson, Waiting and wishing you well. Hope to hear from you soon.

Hi people,
Dr. S arranged for a US which I just returned from.
Everything seem normal according to the tech. So I guess we'll just let time pass and see how it will transpire. Have to say again Dr Sclafani and his team are numero uno. We're leaving tomorrow back home. Going to miss the great food here.

Take Care All

Normb

_________________
In a perfect world, my Neuro would like to be a vascular specialist.
'92 diag RR - '05 SP

Thanks for your report NormB-- look forward to your updates when you are home.
I also hope we hear from you soon, NJ-- best to both of you in your travels back to Canada (west and east!) and in seeing improvements in time.

Has anyone heard from Johnson?

no
...and i'm hoping he's laying low getting some doc ordered rest after a long procedure with nothing but good results.