Brooklyn-bound

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby numbness23 » Thu May 26, 2011 7:45 am

not everyone jumps right back from a procedure like this. the anticipation and anxiety can be freightening and exhausting. The guy probably just hasnt got to his computer yet, nor is he ready. Relax.
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Postby numbness23 » Thu May 26, 2011 7:58 am

GOD I HOPE HES OK!!!THE SUSPENSE IS KILLING ME!!!! WRITE US JOHNSON :lol: DAMN IT!!!
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johnson

Postby zinamaria » Thu May 26, 2011 9:19 am

He'll get back to us.
1. He loves to write
2. He's a naure boy and so may have hightailed it out of NY
3. But on the other hand, he is a painter, so museums may be on his list.
4. He's an adventurer so who knows where he decided to travel to.

The possibilities are endless with Not Johnson, but I must say the suspense is rising in me too!
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Postby bestadmom » Thu May 26, 2011 9:20 am

I pm'd with Johnson on Monday because we were going to try to meet in NY. He was planning to be in Manhattan on Tuesday and I wasn't in until yesterday, when he was driving back to Ontario to fly back west.

I didn't want to answer about his where abouts and hoped he would, but I believe (and hope) he is fine.
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Postby KikiT » Thu May 26, 2011 10:57 am

Anyone Brooklyn bound June 6th????? I will be there at 11.
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Postby Cece » Sun May 29, 2011 5:09 pm

Bestadmom, thanks for letting us know, that assuaged some worries at least!

Kikit, that's coming soon, best wishes with the procedure.

NotJohnson, we're keeping the home fires lit here in this thread, til you return! Healing and happiness....
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Postby DrDiana » Sun May 29, 2011 7:22 pm

Jee Whiz,

Most of you have "known" Not Johnson for a while, but even as a relative newbie here, I'm not even sleeping well, not knowing how he is doing.

Hopefully out partying...

Thinking great and healing thoughts for you, Not Johnson...

Dr. Diana
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Special interest in "brain drains" and how they affect numerous conditions, including MS, Ehlers-Danlos, Parkinson's, Alzheimer's, etc. I am a therapeutic optometrist on professional disability with EDS, POTS, CCSVI, mast cell disea
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Postby Johnson » Sun May 29, 2011 10:53 pm

Ahem... Actually, I don't need to clear my throat anymore, and I can swallow again,

Wow. It's heart-warming to read your queries and concerns. I just got home a few hours ago. Internet access has been a challenge (and my home computer seems to have packed it in whilst I was away).

Our dear and good Dr. Sclafani worked on me for three hours or more. A few fentanyl spritzers made it seem a dream, but I have certainly had improvements.

I'm pretty frazzled just now from arduous traveling, and will report in more detail anon. I think Dr. Sclafani found a few fascinating facets in his foray, and may well comment in his Q&A thread.

I'm going to bed...

I'll be back.
My name is not really Johnson. MSed up since 1993
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Postby HappyPoet » Mon May 30, 2011 1:22 am

So wonderful to hear from you!!

Can't wait to hear details about your improvements (swallowing, WOW!), but details about the fascinating facets found in forays by Dr. S can wait until after you've slept soundly for a long time.

Sweet dreams, Not Johnson :)
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Postby munchkin » Mon May 30, 2011 5:32 am

That's wonderful news, take a lot of rest time. That was a long journey that you took.
Please give us as many details as you can when you feel up to it.
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Postby Kathryn333 » Mon May 30, 2011 7:44 am

Welcome home, Johnson. We were all so worried about you. I'm so glad to read about your improvements and look forward to more details when you're up to it. :D :D :D
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Postby blossom » Mon May 30, 2011 9:03 am

happy to hear you are doing ok and improvements. take care and get rested up.
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Postby Blaze » Mon May 30, 2011 10:10 am

Welcome Back Not Johnson!!! As you know by now, your absence and prolonged silence had us all worried.


Looking forward to hearing more from you. Cheers.
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Postby Cece » Mon May 30, 2011 10:26 am

My daughter's mini-laptop went dead in Brooklyn! We were at a nice hotel but it had a bad outlet and there was a little zap while using the laptop and it went dead.

Thankfully it was within warranty and was replaced. I managed to remain connected although there was a little more fussing over who got to use the remaining laptop. As for why we travelled with two laptops, that was entirely my techy husband's doing! I had argued against it.

Glad to hear from you Johnson! Future patients now know exactly how to prank us. :D
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Postby DrDiana » Mon May 30, 2011 6:29 pm

You made it back NotJohnson!

Sure, you go ahead and rest. The good thing is that we can ALL rest better now!
Looking forward to hearing about your adventure...
:D
Dr. Diana

Special interest in "brain drains" and how they affect numerous conditions, including MS, Ehlers-Danlos, Parkinson's, Alzheimer's, etc. I am a therapeutic optometrist on professional disability with EDS, POTS, CCSVI, mast cell disea
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