I also wonder why pwMS have a higher blood flow when they stand up, compared to ealthy subjects. It is clear that blood flow is important in MS.
The CCSVI research is in an early stage, and original studies have not been replicated so far. However, several studies at least confirme a venous dysfonction among those with MS.
No one can say CCSVI is the cause of MS, nore it is a hoax. Time will tell.
I state CCSVI is more than a hope, it is linked to MS and leads to a better understanding of MS.
The problem I have is that everyones hope is based on Zamboni and his original "trial" results. Even if there is some sort of connection between CCSVI and MS, the myths created during the first few months of Zamboni's press release still remain. I am tird of hearing Zamboni and his buddies come up with lame excuses about body positioning, equipment flaws, and incompetent professionals. Zamboni was somehow able to identify a condition that ALL his subjects had and give it a fancy name using, not the "gold standard" but an ultrasound machine. Wasn't it supposed to be case closed after this discovery?? I have said it before, and actually I think Lyon said it first, CCSVI is in a no lose situation. We seem to be at the point where we want CCSVI to be "it" so badly that people are willing to pour loads of money into research that honestly, if it is possible to seperate yourself frpom the crazy myths and drama surronding CCSVI, looks to be going nowhere. Does anyone think for a second that some of the researchers and bloggers who lived and breathed CCSVI over the last few years will ever admit they MAY have been wrong?? No way. I am not saying CCSVI research should end today becasue who knows maybe there will be some evidence researchers can find about CCSVI that will benefit us but it is time to stop believeing you are going to get any kind of straight talk from people who have egos to big to admit what is really happening.