2ND Time better results than the 1st Procedure???

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

2ND Time better results than the 1st Procedure???

Postby Salerdog » Fri May 27, 2011 12:04 am

Anybody get better results from their second procedure compared to their first time. My Wife ended up worse than before she had her first procedure right from day 1, over 8 months ago. Strongly considering a second go around. Feedback would be very appreciated.
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Postby dania » Fri May 27, 2011 6:04 am

This is a difficult question to answer. I got great improvements with my first but they only lasted a week. The second got very little improvements but they too are gone and I am worse than ever. Tried again, this time with Dr Siskin (first 2 times in Bulgaria) and my veins were 100% blocked. Nothing he could do. Tried again with Dr Arata and again could not help because my veins were totally blocked with scarring. I have talked to some and their second did little and I know of one that the second did wonders.
I can bet dollars to donuts that you wife, if she got worse after angioplasty, her veins stenosis is more severe than before the procedure.
If you want to try again I would see Dr Arata. He does it a little different. Believes it is a valve problem and treats the valves while doing angioplasty. I am sorry I jumped on the band wagon so early. Perhaps if I had waited and seen Dr Arata first I would not be in this predicament.
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Postby Cece » Fri May 27, 2011 7:04 am

After you posted last time, salerdog, I heard from someone who had also gotten worse the evening of their procedure. Veins were still open. I don't get it.

(Stress of travel? Stress of the procedure? Hypoxic damage from long/overseas flight? Ballooning the jugulars cutting off blood flow to the brain, causing some damage to already damaged cells? Contrast from the procedure leaking into the brain and getting cleared out by the immune system? Inflammation in the veins as a result of being ballooned triggering a greater inflammatory response which affects the brain as well? Coincidental ill-timed relapse?)

It wasn't a situation where spasticity got better and then without the stiffness of spasticity that caused walking to worsen?

I cannot answer your question directly, I've only had the one procedure. I don't think we've heard from too many people in the situation you're describing. There is always the hope that something was missed in the first procedure; IVUS is useful in finding intraluminal abnormalities that are otherwise missed.
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Postby dc10 » Fri May 27, 2011 8:03 am

i didnt get worse after the 1st procedure but after my 2nd one i did feel a bit worse in mobility,

i later found out this was because he didnt balloon the correct area of my IJVs so there was still stenosis, even more so as they opened the azygos but not the IJVs

i have since had a 3rd procedure and the deterioration i had from the 2nd one have improved back to my state after the 1st procedure


So there is a possibility your IR ballooned incorrectly
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Facebook Reply by Dayle Baich on May 27, 2011 at 9:58pm

Postby Salerdog » Mon May 30, 2011 10:25 pm

i have had 2 procedures. With good results the first time, relief of many symptoms. These benefits only lasted 2months and at 6 moths back where I started so had 2nd procedure. This time had NO improvements. After 7 weeks now I have been progressively getting worse. Are now unable to care for my self and have progressed beyond where I ever was before. Are afraid to do again, fearing Scar tissue could be the problem.

Waiting for research to catch up and hopefully an alternative.

Good luck Dayle
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Postby dania » Tue May 31, 2011 5:35 am

I have heard the story of a second procedure not recapturing the improvements of the first too many times. Mine is one of them also.
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Postby laura383 » Tue May 31, 2011 10:22 am

good improvements first time, small balloons, didn't last long (few weeks) June 2010, vastly better 2nd time, big ballons, lasted 6 months Aug 2010, round 3 veins already clear no blockages but symptoms were back Mar 2011.
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