Kuwait

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Kuwait

Postby ikulo » Fri May 27, 2011 6:32 am

Anyone hear any news coming out of there? They started doing the procedures last year sometime, so I was hoping to get a lot of good reports coming out of there...
User avatar
ikulo
Family Elder
 
Posts: 444
Joined: Tue Aug 04, 2009 2:00 pm
Location: colorado

Advertisement

Postby numbness23 » Fri May 27, 2011 9:39 am

It seems that all the hype is in the beginning...Followup in the CCSVI arena is unheard of and unavailable...thus the reason we are getting nowhere and nobody believes us...its the taillight warranty. Once they see your taillights they waive bye bye...
User avatar
numbness23
Family Member
 
Posts: 41
Joined: Tue Feb 15, 2011 3:00 pm

Postby Cece » Fri May 27, 2011 10:15 am

I am grateful to Dr. Cumming for getting interested in CCSVI and being in my hometown (Minneapolis) so that I can continue follow-up with him. We do not know what the restenosis rates are with the treatment method I underwent, as it's different than Zamboni's original methods.

There are doctors who are simply treating and there are doctors who are treating, learning, researching, presenting, publishing and collaborating. A year ago we were desperate for anyone who would simply treat. Now I am most grateful to the doctors who are treating, learning, researching, etc, etc.
Cece
Family Elder
 
Posts: 9053
Joined: Mon Jan 04, 2010 3:00 pm

Postby 1eye » Fri May 27, 2011 10:36 am

numbness23 wrote:waive bye bye...
Don't know if it was intentional, but I like the spelling.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2997
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada

Postby numbness23 » Fri May 27, 2011 10:53 am

glad you caught it 1eye!!!!!

waive/wāv/Verb
1. Refrain from insisting on or using (a right or claim): "waive all rights to the money".
User avatar
numbness23
Family Member
 
Posts: 41
Joined: Tue Feb 15, 2011 3:00 pm

Postby ikulo » Fri May 27, 2011 10:56 am

Well I was just hoping to see at least a few positive reports. If they're doing a few procedures a day, and been doing this for a year, then we should have a few hundred reports out there. I feel like if it were positive we'd be hearing about it right now, but sadly it's been very quiet. Just curious.
User avatar
ikulo
Family Elder
 
Posts: 444
Joined: Tue Aug 04, 2009 2:00 pm
Location: colorado

Postby Cece » Fri May 27, 2011 11:16 am

www.ccsvikuwait.com/Details.aspx?d=4

there is also a Kuwait-CCSVI site on Facebook.

They speak Arabic in Kuwait, I don't think we have any Kuwaitis here at TIMS...?

Will Dr. Sinan be at Dr. Sclafani's symposium this summer? He attended last year.

Dr. Sinan presented on doppler ultrasound in CCSVI in March at a 5th Gulf Vascular Society Conference:
www.gvs2011dubai.com/GVS-site-progrm.html

www.overcomingmultiplesclerosis.org/Com ... ment-15013

There was a poster here who was treated by Dr. Sinan in Egypt and who followed up with Dr. Cumming in Minneapolis and was found to have lost a jugular to clotting/collapse after the first procedure.
Cece
Family Elder
 
Posts: 9053
Joined: Mon Jan 04, 2010 3:00 pm

Postby Cece » Fri May 27, 2011 11:30 am

One of Dr. Sinan's successes is Leeds-Grenville resident, Sandra Whitaker who had the surgery done Dec. 3, 2010.

"I was very fortunate. I had lots of very good improvement," Whitaker said.

Her treatment was able to return much-loved pas-times to her - reading and improving her ability to walk long distances.

"My life is so different now than it was in November," Whitaker added. "It's like a whole new lease on life."

www.reformedms.org/ms-ccsvi-news/local- ... -treatment

Dr Tariq Sinan from Kuwait carries out the procedure on patients from all over the world at a private clinic in Alexandria in Egypt where they do not use stents.

He says he has seen amazing improvements in the patients he has treated.

www.mstrust.org.uk/news/recentstories/a ... sp?id=4540
from March 2011

I would like to see a publication come out of Kuwait! He has been doing a trial. If a patient had less than 50% stenosis, those patients went into the control group and were not treated, if I understand correctly.
Cece
Family Elder
 
Posts: 9053
Joined: Mon Jan 04, 2010 3:00 pm

Postby THEGREEKFROMTHED » Fri May 27, 2011 1:13 pm

Cece you should have been a research scientist! Where do you find this stuff? The only thing i could find was that all patients were required to refrain from eating hummous and tabouli post procedure. Something about it crossing the bbb.

Ps. They really do make amazing food!
User avatar
THEGREEKFROMTHED
Family Elder
 
Posts: 162
Joined: Sat Mar 27, 2010 3:00 pm

Postby Cece » Fri May 27, 2011 1:50 pm

:)
Consumption of hummous or tabouli is more along the lines of treatment protocol. We have Dr. Sinan's complete treatment protocol here:
www.facebook.com/topic.php?uid=14008015 ... &topic=341
Cece
Family Elder
 
Posts: 9053
Joined: Mon Jan 04, 2010 3:00 pm

Postby THEGREEKFROMTHED » Fri May 27, 2011 1:56 pm

Got it now...heparin not hummous...
User avatar
THEGREEKFROMTHED
Family Elder
 
Posts: 162
Joined: Sat Mar 27, 2010 3:00 pm

Postby Cece » Fri May 27, 2011 2:25 pm

your posts always make me hungry for some reason.

dinner time....
Cece
Family Elder
 
Posts: 9053
Joined: Mon Jan 04, 2010 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service