47 patient Study Results from AMEDS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

47 patient Study Results from AMEDS

Postby laura383 » Tue May 31, 2011 10:34 am

User avatar
Family Member
Posts: 61
Joined: Fri May 14, 2010 3:00 pm


Postby Cece » Tue May 31, 2011 11:20 am

wow, very interesting!
Characteristics of patients who have had positive results from CCSVI treatment indicate that most beneficial groups are:
Relapsing-Remitting type of MS
At young age
With short disease duration
With lower baseline EDSS.

Young age is defined as under 30; short disease duration is defined as 5 years or less.

Even if these are trends, there are still PP patients in the improvement category and RR patients in the nonimprovement category, etc.

This is measuring improvement as an improvement in EDSS, which does not capture all possible improvements such as in vision, fatigue, etc.

It is quite possible that PP patients have more complicated azygous disease (see the recent discussion in DSASQ, of renal veins and azygous stenoses not seen on venogram but found with IVUS). So, fewer improvements for PP patients could be a result of insufficient treatment of the complicated azygous.

I would take these as preliminary trends but would want to see the technique perfected (or as close as possible) before taking them too much to heart.
Family Elder
Posts: 9290
Joined: Mon Jan 04, 2010 4:00 pm

Postby David1949 » Tue May 31, 2011 11:35 am

Looks like the results for over-the-hill males who don't have the relapsing remitting type are not good.
Family Elder
Posts: 850
Joined: Mon Aug 23, 2010 3:00 pm

Postby EJC » Tue May 31, 2011 11:37 am

I'd like to see the age breakdown of the 47 patients with disease duration and results that crossmatch both.

It's a little early to be drawing conclusions from such a small group, when the control group is 470 patients it will carry far more weight.

Still, nice to see results being compiled, but wthout a universal standard for collation or for the procedure itself it's little more than a bit of PR.
User avatar
Family Elder
Posts: 633
Joined: Tue Apr 20, 2010 3:00 pm
Location: Surrey, UK

Postby 1eye » Tue May 31, 2011 1:16 pm

David1949 wrote:Looks like the results for over-the-hill males who don't have the relapsing remitting type are not good.

*I* knew that. Still working on it though. Almost 57 1/2 years old. Triked ~9K today. BP ~106/75. HR ~85.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
User avatar
Family Elder
Posts: 3709
Joined: Wed Mar 17, 2010 4:00 pm
Location: Kanata, Ontario, Canada

Postby MrSuccess » Tue May 31, 2011 4:19 pm

usually .... I am pleased to read such wonderful news..... but what with all we know ...... I must stress great caution to anyone thinking of travelling to Poland.

When someone tells you exactly what you want to hear ..........

Mr. Success
User avatar
Family Elder
Posts: 922
Joined: Fri Sep 18, 2009 3:00 pm

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service