msrelly wrote:Hi - long time volunteer with the MS Society here. We're doing our best - I promise!!
The CCSVI working group is genuinely working towards achieving a better understanding about the current state of CCSVi from a medical, scientific and patient perspective.
Information about the Working Group, who is in the working group and the reports from their meetings all available here (scroll down page towards bottom):
I know we would all love to be a fly on the wall at the upcoming meeting, but I think this is a good chance to allow some very knowledgable and influential people to meet and speak freely without having to worry about being shot down from either side of this debate.
thanks for listening
I still think if the MS Society wants to learn, they would reconsider and allow slides. The discussion format is all well and good but Interventional Radiology is well suited to imagery/slides. Rather than being told, "Here is what I am seeing," imagery would allow them to see it too.
Artyom wrote:Maybe its going to be stupid question but is that real that Hubbfond = saentology? I just have seen many info about meditation on their site.
P.S. Sry for bad english and stupid question
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