This is groundbreaking stuff everyone - for it to do the greatest good for the greatest number of people, we need baby steps and that means research and discussion and debate.
Why is there not a client advocate in the room?
I agree completely Cece. It seems Yves Savoie and MSS want to keep minds--as well as our veins--completely closed.
The MS Society and the CCSVI Working group are truly trying to do their best for everyone with MS. that's why they have invited some of the world's brightest lights in CCSVI to come and speak to them. Honestly, if they didn't want to hear the message wouldn't they just ignore the Drs. instead of meeting with them?
the makeup of the CCSVI working group includes one of the Canadian IRs leading a treatment trial (Dr. Machan from UBC) and includes several people with MS. I know some of the panelists personally.
From the Ms Society's CCSVI Working Group Biographies (I gave the link in an earlier post):
Members of the CCSVI Working Group were
chosen based on skill sets as they relate to CCSVI and to provide a
balanced representation of the interests within the MS Society. For privacy
and confidentiality reasons, the MS Society does not reveal the personal
connections individuals have to MS. The majority of members are affected
by MS in their personal lives."
Look, lets celebrate the forward movement and exchange of ideas, not criticize everything that's not exactly to our liking. No one is criticizing the SIR because they announced they need more research, yet we seem to jump on any other organization that suggests the very same thing.