MrSuccess wrote:June 17th ...... plenty of time for angry MS'ers to turn up the volume and demand an open door policy ...... and allow the presenters to provide visual aids .... as we know ..... " a picture is worth a thousand words "
and Dr . Sclafani ...... you are " A Number 1 ... Top of the heap "
..... in Mr. Success' books ......
Sal would you we are a wire strictly for your own purposes of course?
Why is there not a client advocate in the room?
I agree completely Cece. It seems Yves Savoie and MSS want to keep minds--as well as our veins--completely closed.
Members of the CCSVI Working Group were
chosen based on skill sets as they relate to CCSVI and to provide a
balanced representation of the interests within the MS Society. For privacy
and confidentiality reasons, the MS Society does not reveal the personal
connections individuals have to MS. The majority of members are affected
by MS in their personal lives."
msrelly wrote:Just like any treatment or therapy, they don't all work for all people, but just understanding what they can and can't do, helps us solve the puzzle.
That's why the interventional radiologists' voted overwhelmingly to study this more. And, thankfully, studies will include treatment arms.this may be due to complications and inappropriate treatments, all of which can be improved in patients yet to be treated.
the makeup of the CCSVI working group includes one of the Canadian IRs leading a treatment trial (Dr. Machan from UBC) and includes several people with MS. I know some of the panelists personally.
I have seen too much of "If you're not with us, you're against us" happening in the CCSVI world and its wrong. Both sides, pro and con are guilty.
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