A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.


Postby bonitamae » Wed Jun 01, 2011 7:20 pm

Has anyone found any secret to help the muscle spasms/clonus?
I'd rather not increase my baclofen intake if there is something else that will provide relief. anyone?
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Postby blossom » Wed Jun 01, 2011 8:30 pm

have you had your potassium checked? after the doc found i had low potassium and take a prescription type it helps me. i'm not totally free of them but much much better.
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Postby CD » Wed Jun 01, 2011 10:58 pm

Hi bonitamae,
I take Magnesium tablets or you can try CVS brand, Epsom Lotion to rub it in instead of ingesting magnesium.

For my myoclonic jerks or tremor I take Clonazepam (Klonopin brand name). It is the only drug in the benzo family of drugs that has anti-tremor properties.
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
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Postby munchkin » Thu Jun 02, 2011 5:21 am

I take equal parts calcium and magnesium (citrate & oxide).
An added benefit for me was my finger nails have gotten stronger and less likely to peel.
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Postby David1949 » Thu Jun 02, 2011 12:52 pm

Two things:
1) An over-the-counter product called Restfull Legs. It helps a little.
2) Upper Cervical Chirpractor adjustments. This has helped quite a bit with the muscle spasms that previously plagued me at night. It has not eliminated the problem but has improved it greatly. Unfortunately it has not helped with the biggest problem; drop foot and weakness in my left leg.
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Postby 1eye » Thu Jun 02, 2011 5:38 pm

I guess when I am whining about spasms I should try to remind myself that I've been off Baclofen since last year. My best solution, believe it or not, is a foot massage, either by a battery operated gizmo I have (not the erotic kind), or by my own fingers, or by my good wife's fingers.

Strangely, the effect on me is pretty instantaneous.

I seem to get it in the evening after eating, and I blame the heat from my digestion. Maybe cold drinks would help; I don't know. For heat, I do find cooling my neck helps. Firemen dip their wrists in ice water.
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Postby suze » Thu Jun 02, 2011 10:48 pm

I take a very deep breath, then expel all the air from my lungs, then breathe as deeply as possible. I do this a couple of times, and sometimes need to repeat the process. Be careful that you don't hyperventilate.
I find that this also works a bit if I get clumsy while I am walking. I just stop, lean on my stick, breathe a few times and then proceed.
There probably is something significant there about getting oxygen into my brain, but as you all know, that is a long story.
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