After Balloon Angio, is 21 days of Heperin shots sufficient?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

After Balloon Angio, is 21 days of Heperin shots sufficient?

Postby dc10 » Sat Jun 04, 2011 11:02 am

After my balloon angio of both IJVs and several areas of Azygos i was given a script for a daily Heperin shot for 21 days,

i have been doing the daily Heperin shots and was wondering whether this is sufficient and to not take any blood thinners after the 21 days?

thanks
DC10
User avatar
dc10
Family Elder
 
Posts: 250
Joined: Tue Sep 21, 2010 3:00 pm

Advertisement

Postby Cece » Sat Jun 04, 2011 3:03 pm

What did your IR advise?

Some continue on with regular or baby aspirin.

There is not yet a consensus on what the best post-procedure anticoagulation regimen is or isn't....
Cece
Family Elder
 
Posts: 8989
Joined: Mon Jan 04, 2010 4:00 pm

Postby dc10 » Sat Jun 04, 2011 3:08 pm

The IR just said to take the 21 days of Heperin, i mentioned taking Aspirin and he said it was up to me but not essential, just wanted others opinions,

as it seems in a lot of cases the patients are more 'clued' up on CCSVI than the doctors


Am i right in thinking the anticoagulants like heperin only prevent the clotting of blood as a result of the dilation of the vein and the body seeing this as injury that requires blood coagulation?

do mobility symptoms benefit from anticoagulants?
User avatar
dc10
Family Elder
 
Posts: 250
Joined: Tue Sep 21, 2010 3:00 pm

Postby Donnchadh » Sat Jun 04, 2011 9:07 pm

My IR advised to take "baby" aspirin (81mg) indefinitely. So far so good no clotting issues, etc.

Studies have shown that the smaller dosage is just as effective as regular dosage for preventing heart problems with greatly reduced stomach issues.

Donnchadh
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!
User avatar
Donnchadh
Family Elder
 
Posts: 513
Joined: Sat Jan 23, 2010 4:00 pm

Answer - it depends

Postby MarkW » Sun Jun 05, 2011 4:47 am

Answer - it depends on your vascular condition before venoplasty. CCSVI Alliance website has sound advice and there are other threads on TiMS.

MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 11 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
User avatar
MarkW
Family Elder
 
Posts: 1142
Joined: Thu Oct 19, 2006 3:00 pm
Location: Oxfordshire, England

Postby dania » Sun Jun 05, 2011 7:56 am

It seams that having a stent increases your risk for thrombosis. Follow what your doctor says. Ask if you should be taking asprin.
User avatar
dania
Family Elder
 
Posts: 1088
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Postby Cece » Sun Jun 05, 2011 8:05 am

dc10 wrote:Am i right in thinking the anticoagulants like heperin only prevent the clotting of blood as a result of the dilation of the vein and the body seeing this as injury that requires blood coagulation?

This is correct.
do mobility symptoms benefit from anticoagulants?

No. The anticoagulants are prescribed to hopefully protect against thrombosis as a complication of the injury done to the vein wall by the ballooning.

Are you inclined to continue on with baby aspirin? There is some reason to believe that aspirin can help protect against intimal hyperplasia although this might be most true the week before and the week after the angioplasty.

There has also been some research by the Mayo clinic suggesting that aspirin has a mild positive effect improving MS fatigue.

It is unusual for a patient to be prescriped heparin post-procedure, that is very strong.

I took aspirin today, as well as other supplements (coq10, garlic, ala, milk thistle, curcumin, green tea extract, etc.) I am nearly four months post-procedure.
Cece
Family Elder
 
Posts: 8989
Joined: Mon Jan 04, 2010 4:00 pm

Postby dc10 » Sun Jun 05, 2011 3:01 pm

i might take baby aspirin cece but i think i will see how i am for 1-2 weeks after stopping the Heperin shots (last one was today),

then after 1-2 weeks i will do a trial of baby aspirin and moniter any chnges,
if theres positive changes from aspirin then i will continue.

i tried green tea extract but after severakl weeks found it made my legs weaker, when i stopped this improved.
same with milk thistle,
but i guess it affects everyone differently


i thought it was common to be given heperin post procedure and was an efficient safety procaution?
User avatar
dc10
Family Elder
 
Posts: 250
Joined: Tue Sep 21, 2010 3:00 pm

Postby Cece » Sun Jun 05, 2011 3:40 pm

Lovenox or plavix are more common. There's also Arixtra, Coumadin, aspirin only, and nothing at all! Arixtra and lovenox are heparin-like.
Cece
Family Elder
 
Posts: 8989
Joined: Mon Jan 04, 2010 4:00 pm

Postby dc10 » Sun Jun 05, 2011 4:00 pm

The name of the shots i was prescribed for 21 days was 0.6ML FRAXIPARINE , http://www.medsafe.govt.nz/profs/datash ... ineinj.htm
User avatar
dc10
Family Elder
 
Posts: 250
Joined: Tue Sep 21, 2010 3:00 pm

Postby drsclafani » Sun Jun 05, 2011 11:01 pm

dc10 wrote:The IR just said to take the 21 days of Heperin, i mentioned taking Aspirin and he said it was up to me but not essential, just wanted others opinions,

as it seems in a lot of cases the patients are more 'clued' up on CCSVI than the doctors


Am i right in thinking the anticoagulants like heperin only prevent the clotting of blood as a result of the dilation of the vein and the body seeing this as injury that requires blood coagulation?

do mobility symptoms benefit from anticoagulants?


i doubt that you were actually given heparin. Can you tell us exactly what the drug is?
User avatar
drsclafani
Family Elder
 
Posts: 3132
Joined: Fri Mar 12, 2010 4:00 pm
Location: Brooklyn, New York

Postby drsclafani » Sun Jun 05, 2011 11:03 pm

Cece wrote:Lovenox or plavix are more common. There's also Arixtra, Coumadin, aspirin only, and nothing at all! Arixtra and lovenox are heparin-like.


anticoagulation will be a topic of the patient day at the NYC ccsvi symposium july 15
User avatar
drsclafani
Family Elder
 
Posts: 3132
Joined: Fri Mar 12, 2010 4:00 pm
Location: Brooklyn, New York

Postby dc10 » Mon Jun 06, 2011 4:18 am

drsclafani wrote:i doubt that you were actually given heparin. Can you tell us exactly what the drug is?


I am in Europe and the drug was - 0.6ML FRAXIPARINE
User avatar
dc10
Family Elder
 
Posts: 250
Joined: Tue Sep 21, 2010 3:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users