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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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sumsum
PostPosted: Tue Jun 07, 2011 9:01 am 
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Does anybody know how Kathleen Lynch is doing? Her videos on youtube are not online anymore...
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Cece
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PostPosted: Tue Jun 07, 2011 9:35 am 
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Someone asked here about Kathleen a week ago too. Haven't heard. Her videos are taken down?
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bestadmom
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PostPosted: Tue Jun 07, 2011 2:20 pm 
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She is no longer on Facebook. A mutual friend texted her two weeks ago and then a few days later, with no replies. I heard she needed a break from all ccsvi all the time, but to me, her disappearance is worrisome.
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Thekla
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PostPosted: Wed Jun 08, 2011 2:07 am 
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I can understand wanting a break, she's been 110% full speed on this for a long time. I'd really like to just know everything is good and she's just enjoying life.
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MegansMom
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PostPosted: Wed Jun 08, 2011 4:40 am 
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I would also just like to know that she is okay? Can one of her local friends please just let us know?

It will be much appreciated.

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MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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pklittle
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PostPosted: Wed Jun 08, 2011 8:57 am 
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Cece wrote:
Someone asked here about Kathleen a week ago too. Haven't heard. Her videos are taken down?


That was me asking.

thekia wrote:
I can understand wanting a break, she's been 110% full speed on this for a long time. I'd really like to just know everything is good and she's just enjoying life.


She used to be more like 1000%. Perhaps someone that has firsthand knowledge will let us know. She initially was advocating for the doctor in Egypt. Then she went to Pacific in CA for retreatment, got a stent in her azygous, and was very vocal about them (in a very positive way).
:o
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sumsum
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PostPosted: Wed Jun 08, 2011 10:37 am 
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Wasn't she also the one who made the conversation that a couple of MS drug sales men had on an internet forum (seeing us patients first of all as golden cows) public via the CCSVI facebook page?

This stirred quite some noise a couple of months ago. I hope, this - or anything else - has not brought her in trouble...

If someone could let us know, that would be appreciated :roll:
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bestadmom
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PostPosted: Wed Jun 08, 2011 11:26 am 
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sumsum wrote:
Wasn't she also the one who made the conversation that a couple of MS drug sales men had on an internet forum (seeing us patients first of all as golden cows) public via the CCSVI facebook page?

This stirred quite some noise a couple of months ago. I hope, this - or anything else - has not brought her in trouble...

If someone could let us know, that would be appreciated :roll:


That was Kathleen. The mutual friend we have is one of the Seattle "stars" and she's hit a brick wall too. Does anyone have a relationship with Dr. Arata at Pacific Interventionalists? He's the doctor she got retreated at.
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WinnipegGirl_83
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PostPosted: Wed Jun 08, 2011 11:31 am 
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I too was wondering where she had disappeared to. I hope she is ok...
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Lyon
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PostPosted: Wed Jun 08, 2011 11:36 am 
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..


Last edited by Lyon on Wed Jun 22, 2011 4:49 pm, edited 1 time in total.

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bestadmom
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PostPosted: Wed Jun 08, 2011 11:40 am 
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Thank you Lyon.
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MegansMom
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PostPosted: Wed Jun 08, 2011 3:25 pm 
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I sent her an e- mail.

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Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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bestadmom
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PostPosted: Wed Jun 08, 2011 3:34 pm 
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Her cell phone came up on google so I
left her a message. I will post when I hear.
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pollyanna
 Post subject: Kathleen
PostPosted: Wed Jun 08, 2011 9:11 pm 
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I too worry for Kathleen, but honor her space and privacy. She has a good support group. I wish her well, send warm and supportive hugs.
Many Canadians are a supportive army behind her.
When she is ready.
We are hear with open arms and hearts.
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Loobie
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PostPosted: Thu Jun 09, 2011 1:42 pm 
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I hope she's ok. She's a trip for sure, but you can never question her dedication to all of this. Man I hope she's well.

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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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