WeWillBeatMS wrote:Started a new job a month ago and fighting financial challenges. I just tested negative for Lyme with the titer blood test that my neurologist ordered for me. It just went to Quest labs though so I already knew that there was a good possibility that it would come back negative. I will ask if he will order the Western Blot test but I kind of doubt he will because my insurance will likely say it's not necessary. I think I'm going to ask him if I can pay the $500 or whatever it is to get tested through IgeneX.
Thanks for the pm MaggieMae.
Other than Lyme disease, what are some other demylenating diseases are out there that could look like MS?
I'm baffled that it's conceivable that I could have been diagnosed with MS by several neuros and treated with these stupid medicines, particularly Tysabri which I am still on, and never have been tested for other possible diseases.
I've posted this link several times before, but this is an especially important link for you to read and understand, WeWillBeatMS. The paper it links to is a comprehensive look at all of the diseases that can be misdiagnosed as MS, and at the back of the paper you'll find a list a list of 100 such diseases.
The misdiagnosis rate of MS is very high, ranging from 5%-15% in various studies. That's right, out of every 100 MS patients, there is a very good chance that 10 of them don't have MS.
Here's a link to the paper. Please use it as a source for future research. You can Google all of the various diseases that are comprehensively listed at the end of the paper and truly become your own best advocate.
http://www.neurologia.org.mx/portalweb/ ... ulos/6.pdf
regarding Lyme disease, I personally have gone down that road, visiting two of the most prominent Lyme literate doctors, and my understanding is that testing done by any lab other than Igenex is highly inaccurate. I know it's expensive, but it may be well worth the money just for your peace of mind to pay out-of-pocket, if necessary.
In the meantime, please download and utilize the above paper. Education is the key, and self advocacy is the weapon.
Best of luck to you.