@carollevin - There is tremendous debate about all the numbers you noted. But even for the sake of argument, let's say there were 15,000 treatments and just one death. That's 1 death out of 15,000.
This report places the death risk of Tysabri almost exactly the same as CCSVI - (5 deaths out of 63,000 = 1/12,600). <shortened url
My point isn't to stir the nest here, I just want to point out to those considering this treatment as very safe - we are learning more and more about this each day, so please if you're considering having this done, be careful!
i think we cannot think of CCSVI treatment as one entity, any more than we can think of motorized travel as all the same. scooter or motorcycle different from horse, different from automobile, different from airplane, different from bus, etc.
CCSVI interventions must also be stratified. venography- valvuloplasty- venoplasty - stenting - intradural sinus venography, - intradural angioplasty - intradural stenting - open surgical correction, etc.
Are there any deaths yet reported for venography or venoplasty. most are not doing intentional valvuloplasty but i would put that in the same category.
all the deaths i am aware of are from stenting.
I agree that we need to hear about these complications. We will not learn without knowledge.