I had the procedure in October last year, felt no benefit but have actually got a lot worse since and do still get pains in my jugular veins. So although I have not been back to Poland for a checkup, I would be very surprised if the bilateral stenosis hadn't re-occured.
The thing is, I don't think I had the correct treatment to ALL the areas necessary 'for me'. I think at the time, the production line was not treating people as individuals with problems in different areas and that this can be very detrimental to some of us. I suspect I have more problems than in just the jugular veins but as these things aren't yet really being looked at generally I don't see the point in going for the check up, let alone trying another procedure when I had no benefit and worsening the first time.
I feel that if I do it again, I want to KNOW that everything is being covered (as Dr S says, lumbar/CS veins/even pelvic) and that will be a few years away. I may be past help by then, who knows, but my body just can't take going through it again only to result in worsening and possible scarring/ruining any possibility that being patient may give me a chance x
28/07/10, 04/10/10, 16/11/10 - CCSVi Dopplers x3 ** 12/10/10 - Poland procedure. Symptoms worsened. No improvement.
13/02/12 - Wheldon ABX protocol for 1.5yrs. Fairly stable but no improvement. Unable to source alternate ABX needed.