This Is MS Multiple Sclerosis Community: Knowledge & Support

OTTAWA, ONTARIO--(June 29, 2011) - The Honourable Leona Aglukkaq, Minister of Health, today issued the following statement:

This morning I was briefed by Dr. Alain Beaudet, President of the Canadian Institutes of Health Research (CIHR), who chaired a meeting yesterday with the Scientific Expert Working Group on Chronic Cerebrospinal Venous Insufficiency (CCSVI) and Multiple Sclerosis (MS).

Patients and their families have been calling for the funding of a clinical trial on a treatment to unblock veins. Our government has been clear that we are prepared to fund a clinical trial, but only when there was sufficient medical and scientific information to support it proceeding safely.

At yesterday's meeting, experts discussed the seven ongoing studies looking at CCSVI and linkages to MS, and reviewed scientific reports that are presently available. Based on this information, Dr. Beaudet has advised me that there is unanimous agreement that a clinical trial should proceed at the Phase I/II level.

I have asked CIHR to establish the terms of reference for this clinical trial. We are committed to launching an open and transparent call for applications as quickly as possible. We have some of the world's best MS and vascular researchers in this country, so I'm confident they will put forward excellent proposals.

I want to thank the Scientific Working Group on CCSVI and the MS Society of Canada for their dedication and hard work. Our Government appreciates all they have done to grapple with this important issue.

It has been a moving experience to meet with and hear from so many MS patients and their families who have shown tremendous courage in the face of such a difficult illness. I wholeheartedly applaud those affected and their families who have to go through such difficult moments.

I have always said that I would do everything I can to accelerate progress in this area, and I believe today's announcement is another example of our government's commitment to keep working tirelessly in the fight against MS.

Interesting that same CIHR group which last year unanimously opposed clinical trials now unanimously agrees to proceed. They cite the seven trials underway, but to the best of my knowledge, most of those studies have not yet begun or are in the very early fledgling stages.

For whatever reason, they're finally recognizing us. Together we are making a difference!

I watched the anouncment and it seems clear to me that this "unanimous" 180 degree turn is not based on the 7 studies that are not yet even close to completion. There is something going on, I don't know what. Maybe it's just public pressure from people like us. Whatever it is... I'll take it.

Bruce.

gawd I'm getting cynical.

At yesterday's meeting, experts discussed the seven ongoing studies looking at CCSVI and linkages to MS, and reviewed scientific reports that are presently available. Based on this information , Dr. Beaudet has advised me that there is unanimous agreement that a clinical trial should proceed at the Phase I/II level.

The CIHR meeting highlights indicate that the seven funded studies are progressing well.  As of July 1, 2011, the studies will be at their halfway point, concluding in July 2012.  One year interim progress reports will be available in the coming weeks and will be posted on mssociety.ca and ccsvi.ca.