www.cardiovascularbusiness.com/index.ph ... e&id=28535
“It really is the classic model of one person tells two friends, they tell two friends, and so on,” Siskin said in an interview. “There are a lot of anecdotal reports of success, that haven’t necessarily been published in the literature, but have been circulating among social networks online. Patients are hearing about this through their friends.”
Siskin said the MS community is paying close attention.
“They might not see each other in close proximity, but online, this is a very tight-knit community of patients. They share information regularly,” Siskin said. “When someone undergoes a procedure and they have an outcome that they consider successful, many of those patients will go online and tell patients who are suffering from the same illness about their experience.”
“There have been principally two reports that have focused exclusively on safety. Both of them have found a very low rate of significant problems,” Siskin said.
“The view of the neurology community is that this isn’t real until data demonstrates that there’s something to it,” he said. “Honestly, that’s a fair opinion.”
I disagree with that last bit.