Post CCSVI Recovery

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Post CCSVI Recovery

Postby jorge123 » Sun Jul 03, 2011 9:36 am

Had my procedure about two weeks ago and have had the weirdest recovery. Bilateral jugulars were angioplastied but not the azygous. I was really sore after the procedure around the jugulars (normal). Then had pressure in the middle of my chest for about a week after the jugular soreness went away(abnormal). Then had bad neck soreness, felt like a pulled muscle or pinched nerve (abnormal ). This morning I am back to having bad left sided jugular soreness as if it was the first day of the procedure. Symptomatically, I felt great for about a week. I had increased sensation in my hands and feet, warmer hands and feet, better balance, better coordination, no more MS hug, no more restless legs and what felt to be better gait. Some symptoms seem to have gone back to pre procedure status. Pretty disheartening. Just wondering if anyone else has experienced this type of recovery or something similar. Any input is greatly appreciated. [/b]
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Postby munchkin » Sun Jul 03, 2011 10:40 am

Have you talked to your IR? You need to let your IR know and they will help determine the issue and schedule an U/S.

I had the same type of post procedure issues and it is very disheartening and pretty scary. The best thing I can say is to stay calm (I spent a whole weekend in a panic, which didn't help) and talk to your IR asap.

Take care and make sure you are taking the meds prescribed and call your IR on the first work day.
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Postby Cece » Sun Jul 03, 2011 12:07 pm

It's still very soon after your procedure. Did your IR put you on blood thinners? Do you have a follow-up ultrasound scheduled? I panicked a bit because my right jugular soreness went away after a week but my left jugular was very sore for two months. It eventually subsided and always looked great under ultrasound.
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thanks for the comments

Postby jorge123 » Mon Jul 04, 2011 1:22 am

I was on blood thinners for 2 weeks and was told I didn't need them since there was no stent placement. I had my procedure done in Newport beach at the Pacific interventionist clinic. There they do no use ultrasound but MRV only. I plan to wait it out one more week and see what happens.
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