This Is MS Multiple Sclerosis Community: Knowledge & Support

If you want your questions ansered which I might are very good questions Cece ask them at Synergy they will gladly answer these.

Lassy you sound like you need to get laid more, you are bringing up a post that nobody has paid attention to since July. Talk about desperate. I am sure the outfit that caters to the Canadians' wallets is doing just fine without bringing up these old post LOL. But hey I have been away myself for months just to find that TIMS people must have left in droves as there seems to be nothing much going on here anymore except for Doc Sclafanis thread.

Jamit I was asked by MarkW to go to this thread thank you very much my sex life is just. But thanks for your concern.
I don't care how much it cost me to get my life back. Don't know where you have been but wake up places doing the CCSVI are seeing majority of MS patients no matter where in the world they are.
There is no price tag for what I have been given back to my life thanks to Dr Arata doing a way better treatment on me than Bulgaria. Now that is a place that is a scam.
Be very weary of their sham stem cell treatment they are pushing hard on pwMS.

When we started discussing CCSVI on here in '08, none of us envisioned medical tourism. Jeff saw a local doctor at Stanford University, was covered by insurance and has had follow-up exams covered by insurance. He remains MS progression free, with major symptom relief, now almost three years later. He was treated for central venous stenosis, not MS.

It's concerning to see new posters coming on anonymously and defending or promoting particular doctors and their practices. I still recommend patients stay as local as possible, and that they read my thread on the importance of working jugular valves.
chronic-cerebrospinal-venous-insufficiency-ccsvi-f40/topic17954.html
I continue to speak with the doctors around the globe, (will be at a vascular conference next week) and there is currently not consensus as to how to treat CCSVI, although they are getting closer and working together on consensus documents. As Dr. Siskin says, if anyone claims to understand CCSVI 100%, run the other way. His video on this can be found at http://www.ccsvi.org Here's the link: http://www.ccsvi.org/index.php/the-basi ... csvi-video
caveat emptor....
cheer/Joan

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I think if you're going to start ringing the alarm bell on the valvular approach to treating CCSVI, you need more than the weak sauce information posted in that other thread. Synergy Health have probably treated more than a 1,000 patients thus far using their methods and yet I’ve read no reports of patients complaining of temporary global amnesia while lifting weights, taking a dump, having sex or otherwise. On the contrary the reports appear to be of mainly positive results and very low restenosis rates.

In any case, we should be reading more about Synergy Health, their methods and results soon as they have been approved for two IRB studies on CCSVI.

http://www.synergyhealthconcepts.com/synergy-research/

Jugular, I am not selling anything, nor am I alone in ringing the alarm bell. It is being rung by doctors.
I feel compelled to give information that has been discussed by Dr. Schelling, Dr. Zamboni (who is currently working on mechanical venous valve replacements) and the other doctors of the International Society of Neurovascular Disease.
Dr. Chung will be speaking on IJVVI and transient global amnesia and other neurological problems related to aging and valves at the next ISNVD conference. He has years of published research, which is referenced by other researchers.
Here are 375 published papers on the importance of jugular valves-- (this is not weak evidence....)
http://www.ncbi.nlm.nih.gov/sites/entre ... d=18316693
I believe that ALL sides should be discussed. I represent no doctor, no business, just peer-reviewed and published research. Where is the research to back up "valvuplasty??"
That's all I've ever been concerned about on here, since the very beginning.
Research.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I think the importance of functional jugular valves can't be the issue. Functional valves aren't one of the options for anyone with bad valves. So the question would be which is worse: a nonfunctioning jugular valve that is fixed in place blocking flow; or a ballooned jugular valve that is no longer blocking flow but now allowing some degree of reflux flow from the heart?

There are years of research ahead of us. And it would be distressing if anyone is having their jugular valves ballooned if the jugular valves are still functional. Perhaps this is where IVUS can be of use.

The possibility of a mechanical vein valve could work out but I really don't want anything in my veins that might clot or develop intimal hyperplasia. The stories I've heard from people here, with occlusions and ongoing issues related to stents, are awful at times.

you've said it well, Cece. thanks,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Huh! I was thinking, of course they're not ballooning functional valves. They're ballooning dysfunctional valves. But how are dysfunctional valves defined? There are people with low grade stenoses getting treated. Where is the line between functional and dysfunctional? It is a valid question.

No, there are 375 results returned when querying the google database with your search parameters. Searching for information is an important first step, the next is actually reading and reviewing the results. A large number of your returned results have nothing to do with what we are discussing. From what I read, the papers that are on point actually completely contradict what you are alleging. Most implicate venous valve insufficiency with TGA and other deleterious conditions. The condition, venous valve insufficiency, worsens with age.

The point you are missing is that the insufficiency being discussed is invariably a condition where the valves are stuck closed not open. Thus the research you have amassed with your google search actually supports the treatment of venous valve insufficiency as it is associated with such bad things as TGA.

Dr. Arata and his team are of the opinion that venous valve insufficiency is behind most cases of CCSVI and venous hypertension - the true enemy in their view. They discovered that most venous occlusions were caused by faulty valves which is why ballooning the occlusion further upstream almost always fails due to recoil and not treating the actual culprit - i.e. the valve.

They DO NOT blast open functioning valves, only ones that happen to have a major malfunction. Valve insufficiency worsens with age, much like my MS was before being treated. See a link?

The other thing to keep in mind is that during the valsalva maneuver, the valves are supposed to be wide open, not closed. Indeed, even though the IJV's are normally collapsed when standing, they open during the valsalva maneuver due to increased venous pressure. Here is a great article on the IJV's and what happens to them when straining.

http://jp.physoc.org/content/560/1/317.full

Thus, lifting weights, having a BM, or having sex are activities that can only be improved with wide open valves. If they are obstructed, reflux happens and all the bad things that follow. Really, the only activities that should be avoided with valves stuck open are standing on one's head or hanging upside down. Even then, the veins are pressurized to work against gravity and the IJV's should be collapsed anyhow which should prevent back flow.

CORRECTION: I think the IJV's are probably open when upside down, so you should probably avoid this activity if you've had valvularplasty.

Jugular--

That's not correct. Internal jugular vein valve incompetence or insufficiency means the valves are open during valsalva, and allow blood to flow upwards, from the heart to the head. That's not good. The valve should close during elevated throracic pressure or valsalva.
http://www.umbjournal.org/article/S0301 ... 7/abstract



contrast agent going thru open valve during raised pressure = not good.


http://www.ant.org.tw/Print/Folder/9950.pdf

reflux during raised pressure =open and incompetent valve.


http://www.ncbi.nlm.nih.gov/pubmed/7053282

incompetent valve=missing valve or "wide open jugular".
no valve or wide open jugular = no cardiopulmonary resuscitation

In the NEWS TODAY:::
woman has sex, loses memory due to open valve:


http://bodyodd.msnbc.msn.com/_news/2011 ... mory-clean

IF THE VALVES DON"T CLOSE, you could lose your memory, or have a stroke, etc. They actually mention straining on the john, lifting things and having sex in this article. It's a must read....


Closed leaflets or closed valves are called truncular venous malformations.
This is what Dr. Zamboni has found, related to CCSVI and reflux WITHOUT VALSALVA.
There is a distinct difference between the 2.

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thanks for the education cheer. I must have been standing on my head when reading that stuff. Temporary Global Brainfart I guess. I am still perplexed by this though. I do not believe that Synergy are providing any warnings against valsalva maneuvers - which are impossible to avoid anyway. When lying flat on my back, straining as hard as hard as I can, holding my breath and doing bench press, I've noticed nothing. On the contrary, strenuous exercise has definitely been part of my recovery.

What gives?

It would be nice for a doc from Synergy to weigh in.

* never mind

_________________
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'_MS' is over - if you want it
Patients sans/without patience

Jugular--I'm glad we could clear this up. Valve insufficiency means open valves during valsalva or thoracic pressure increases.
I'm glad you are healing, and able to lift weights and do valsalva with no bad effects. Wonder if a doppler exam while you do this would show reflux?
All that matters is how you, personally, are doing. And that is well--
I just want to make sure that people understand how valves work, as we move forward in this research.
To say they are unnecessary is a fallacy.
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS