cheerleader wrote:When we started discussing CCSVI on here in '08, none of us envisioned medical tourism. Jeff saw a local doctor at Stanford University, was covered by insurance and has had follow-up exams covered by insurance. He remains MS progression free, with major symptom relief, now almost three years later. He was treated for central venous stenosis, not MS.
It's concerning to see new posters coming on anonymously and defending or promoting particular doctors and their practices. I still recommend patients stay as local as possible, and that they read my thread on the importance of working jugular valves.
I continue to speak with the doctors around the globe, (will be at a vascular conference next week) and there is currently not consensus as to how to treat CCSVI, although they are getting closer and working together on consensus documents. As Dr. Siskin says, if anyone claims to understand CCSVI 100%, run the other way. His video on this can be found at http://www.ccsvi.org Here's the link: http://www.ccsvi.org/index.php/the-basi ... csvi-video
Cece wrote:There are years of research ahead of us. And it would be distressing if anyone is having their jugular valves ballooned if the jugular valves are still functional. Perhaps this is where IVUS can be of use.
cheerleader wrote:Jugular, I am not selling anything, nor am I alone in ringing the alarm bell. It is being rung by doctors.
I feel compelled to give information that has been discussed by Dr. Schelling, Dr. Zamboni (who is currently working on mechanical venous valve replacements) and the other doctors of the International Society of Neurovascular Disease.
Dr. Chung will be speaking on IJVVI and transient global amnesia and other neurological problems related to aging and valves at the next ISNVD conference. He has years of published research, which is referenced by other researchers.
Here are 375 published papers on the importance of jugular valves-- (this is not weak evidence....)
http://www.ncbi.nlm.nih.gov/sites/entre ... d=18316693
I believe that ALL sides should be discussed. I represent no doctor, no business, just peer-reviewed and published research. Where is the research to back up "valvuplasty??"
That's all I've ever been concerned about on here, since the very beginning.
Valvular insufficiency in ACUV was diagnosed when reflux of an air-based echo contrast agent through the valve could be detected.
Jugular venous reflux (JVR), which could be detected at rest or during Valsalva maneuver (VM), is resulted from an abnormally reversed venous pressure gradient in internal jugular vein (IJV), which pressure is beyond the competence of IJV valves(5-7).
We studied the function of right internal jugular vein valves during cardiac catheterization in 32 patients and external jugular vein valves in vitro from 13 dogs. Patients with normal central venous pressure had competent valves during cough-induced transvalvular pressure gradients of 52.4 +/- 8.6 mm Hg. Ten of 15 patients with elevated central venous pressure had either incompetent or absent internal jugular valves, the latter occurring only in patients with long-standing, severe tricuspid regurgitation. During coughing, competent valves were also demonstrated in the left internal jugular and in the right and left subclavian veins. The excised canine valves were competent at a static transvalvular pressure of 81.8 +/- 3.7 mm Hg. Five of six excised valves remained competent during pulsatile transvalvular pressure of 64.8 +/- 1.9 mm Hg. Thus, thoracic inlet venous valves are usually competent during sudden increases in intrathoracic pressure. These valves may play an important role in establishing the extrathoracic arteriovenous pressure gradient necessary for forward blood flow during cardiopulmonary resuscitation and other states with high intrathoracic pressure.
The closest thing to an explanation researchers have for this sex-triggered amnesia is that the problem may not begin in the brain, but in the neck. In a January 2010 study published in the journal Stroke, Ameriso and his colleagues conducted sonograms of the necks of 142 patients who'd experienced transient global amnesia within the last week. They found that 80 percent of the patients had what is called insufficiency of the valves in the jugular vein.
This vein, which runs down the side of the neck, carries spent blood from the brain back to the heart. Valves in the veins prevent blood from flowing backward toward the head, but if the valves don't close sufficiently, blood could seep back upward.
Jugular wrote:Thanks for the education cheer. I must have been standing on my head when reading that stuff. Temporary Global Brainfart I guess. I am still perplexed by this though. I do not believe that Synergy are providing any warnings against valsalva maneuvers - which are impossible to avoid anyway. When lying flat on my back, straining as hard as hard as I can, holding my breath and doing bench press, I've noticed nothing. On the contrary, strenuous exercise has definitely been part of my recovery.
It would be nice for a doc from Synergy to weigh in.
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