This Is MS Multiple Sclerosis Community: Knowledge & Support

i just want to take a moment here to thank the great dr.'s here on tims. from our first ray of hope "dr. sclafani"-who took his valuable time to help and nudge us through the understanding of ccsvi and is working hard to learn and treat and help many. and he still is faithfully here for those that want to get advice and be treated. joined by "dr. cummings"--there is "dr. flanagan" who in his own right is a force to be recconed with and taking his valuable time with so many of us to guide and help us and brought to light knowledge that has been kept in the dark for an unforgiveable amount of time. with dr. koontz adding his knowledge to the ccvbp thread. now there is "dr. diana" who is here and is adding to trying to help get this all figured out. i probably missed someone if i did i'm sorry.

from dr. zambonni to a girl named cheerleader to dr. dake to dr. haacke then dr. hubbard who's son has ms to all of us and on and on. we learned of the great dr. noda and ctos - we learned of the very great dr. shelling a man way ahead of the game in understanding the cause of the symptoms they call ms but was i feel purposely shoved under the shelf as many other greats are.---

but what a hell of a ride these last few yrs. have been. but , well worth the ride dispite the bumps along the way. kinda reminds me of the underground railroad type thing that is happening in a way. we know the resistance to ccsvi,now we have ccvbp, there's ctos etc. all the info. and treatments it seems those that pull the purse strings do not want to be known about.

but just as the underground railroad worked back in the day-there were good people helping so things would be better for all. now we have doctors putting themselves out there when it comes to mainstream medicine. but are willing to do so for the betterment of all of us. hopefully, these doctors join forces and free us from the bondage of slavery to the symptoms they choose to name ms and lot of other diseases too. then we can say-freedom at last!

my heart felt THANK YOU TO THE TIMS DR'S AND OTHER DR.'S WORLDWIDE WHO ARE FINALLY MAKEING IT HAPPEN AND WORKING IN A NEW AND BETTER DIRECTION!!!

Well said! You have a heart of gold, Blossom!

i agree with this

Dr. Arata even pointed it out when he said about blockages at C1 but i dont think he knows about Upper Cervical Care or chooses not to recognize it.

My personal opinion is if your atlas is misaligned, it will cause your spine to become misaligned, thereby putting pressure on anything in its path, maybe veins, causing CTOS, TOS. it makes sense to me and a few others, idk if it does for anyone else though. every ucc dr already knows this but i dont know if every ucc patient knows though

civickiller, i agree with you 100 per cent. at least in my case and many others. i would hope that this be the first thing looked at and treated properly. then take it from there. we are not all going to be the same there is no holy grail.

but, i feel there's more hope than ever before. and right here at tims are some of the best of the best.

i wish everyone(MS and non MS) would go see a ucc dr. so we could see any correlation between atlas misalignment, severity of atlas misalignment, etc

here here to them all

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PPMS. Liberated Katowice, Poland
06/05/10 angioplasty RJV-re-stenodsed
26/08/10 stent RJV
28/12/10 follow-up ultrasound intimal hyperplasia

Blossom, you're the best at saying what needs to be said.

A round of applause to the doctors, absolutely!!!

The CCSVI community...doctors, patients, advocates, naysayers, newbies, oldtimers (oldTIMSers?)...we are here because we have knowledge to share, questions to ask, decisions to make, support needed or offered...

Blossom, you said it wonderfully.

thank you to all of the Doc's here and to my Doctor...Dr. Siskin, who took the risk when he didn't have too! Thank all of you so very much! Good men! Blessed!

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GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...