Are narrow blood vessels to blame in MS?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby pklittle » Wed Jul 20, 2011 5:25 am

1eye wrote:Replying to my own post again; sorry: I will try to do a write-up of my "what I did on my summer vacation" at the patient day, elsewhere. I just wanted to add, that I blame neckties for my CCSVI. The only job I ever had where I had to wear one, and that's when I started to really go downhill. Going to tell No. 1 Son: wear 'em loose or not at all. I got late-onset necktie disease! 4th last job I had. Stopping wearing them didn't help. The damage was done, and in my stupidity I wore them occasionally on purpose.

:)


Did you wear a necktie when you went to bed at night? It wouldn't matter if you wore a tie while upright, as the jugulars aren't used then.
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Postby 1eye » Wed Jul 20, 2011 5:57 am

You could mess them up any time. Maybe applying external necktie pressure caused the collapsed walls to fuse (I might've had a long day).

:)
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Postby Cece » Wed Jul 20, 2011 6:40 am

late onset necktie disease :D :D
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For those negative against CCSVI

Postby milesap » Fri Jul 22, 2011 5:21 am

Those who are negative against CCSVI visit http://www.ccsvi-tracking.com/aboutUs.php and see the results of over 800 ccsvi treatments measured monthly.
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CCSVI may not be cause but

Postby milesap » Fri Jul 22, 2011 9:09 am

It sure contributes to it. Since Epstein Barr now has been found to two genes that effect the immune system and Epstein causes vein thrombosis its only a question of time when someone links Epstein to damaged veins which leads to MS. It will tie the root cause of MS to Epstein Barr and the effect will be CCSVI and Autoimmune deficiency.
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Postby bil » Mon Jul 25, 2011 12:48 am

MegansMom wrote:Taken seriously ? Are you kidding? He deserves a Nobel prize !

Zamboni was studying arterial flow via color Doppler . These tests show red as oxygenated blood and blue as deoxygenated venous blood and he noticed that people with MS had reflux (which looks purple) After he saw this finding a few times he thought it warranted more study. He had amn interest and knew more about MS than the average vascular physician. In looking more deeply into this he discovered more similarities to venous disease. The tissue type, the iron deposits, etc. He pent many years prior to his study in 2008/09. The reason Doppler is used for screening is that it's non invasive and cheap BUT and this is a big but, it has limitations if the technician s not trained. Also the Azygos is not visible with Doppler.


That isn't correct, doppler ultrasound cannot detect oxygenation.

In a doppler scan the red comes from blood flowing in one direction, blue from blood flowing in the other direction. If you have an artery and vein visible at the same time, then usually the blood is travelling in opposite directions, so you can have the arterial flow in red and the venous in blue. Equally though, if you then turn the scanner round 180 degrees then the arterial flow would be in blue and the venous in red.

Reflux would be predominantly in the opposite colour, i.e. if the flow was mainly blue, but then some red temporarily appeared, that would indicate that some blood had flowed backwards. A certain amount of reflux is so common in the veins that I can't imagine what possible significance could be attached to it though.
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Postby Cece » Mon Jul 25, 2011 7:13 am

bil wrote:A certain amount of reflux is so common in the veins that I can't imagine what possible significance could be attached to it though.

Isn't that why Dr. Zamboni set a standard that the reflux had to last for a certain length of time? To differentiate CCSVI reflux from garden variety reflux.
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