First published research from Stanford

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: First published research from Stanford

Postby ErikaSlovakia » Sat Jul 16, 2011 1:33 am

cheerleader wrote:Two years later... the tests (MRV and venography) of the 39 pioneers at Stanford is published in the American Journal of Neuroradiology. Thanks to Jeff, Lew, Marie, Sharon, coach, Rhonda, gibbs, and all the others for leading the way.

Thank you Cheers and thanks to these patients and all doctors involved. That's how and why I started my CCSVI journey almost two years ago. I started to read their posts in July 23, 2009, read Dr. Zamboni's preliminary study, read Dr. Schelling's book, sent an e-mail to Dr. Simka, waited for Bologna in September 2009 and had my procedure in Poland in November 2009.
Thank you all!
(And we have also CCSVI study in Slovak and Czech Republic)
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Family Elder
Posts: 1125
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe


Postby Lyon » Sat Jul 16, 2011 8:07 am

Last edited by Lyon on Sun Nov 20, 2011 4:09 pm, edited 1 time in total.
Family Elder
Posts: 6061
Joined: Wed May 03, 2006 3:00 pm

Postby MrSuccess » Sat Jul 16, 2011 12:46 pm

We now have the Zamboni 65 CCSVI evaluation and intervention as the worlds first study linking MS to a condition called CCSVI.

We now have the second to be published CCSVI to MS evaluation and intervention ..... I will label ...... Dake 39

There are more . I believe Dr. Zivadov is proceeding with a 10 person study. No results or publications as of yet.

Unless there is a FULL evaluation ....... using the best possible testing techniques and available medical equipment ...... and an effort made to improve blood flow ...... and most important ....... PUBLISHED results that have been peer reviewed .......... I don't attach much importance to any such reports .

I point out the often overlooked FACT ..... that the much ballyhoo'd LANCET features articles written by medical professionals on a variety of subjects ...... that the LANCET journal itself carefully reminds the reader that the article is of the opinion of the author ..... and NOT the opinion of the Lancet .

Mr.Success' eyebrows were raised considerably ..... by the DAKE 39 report ..... labeling C1 as a common area of stenosis. :idea:

I look forward to seeing more completed and published CCSVI-MS studies to this list ...... including ........ counter opinions .

Mr. Success
User avatar
Family Elder
Posts: 922
Joined: Fri Sep 18, 2009 3:00 pm

Postby Cece » Wed Jul 27, 2011 12:19 pm

The prevalence of IJ segments graded mild or worse on CV was 54%.

If everyone had IJV stenosis, what does this mean exactly? Was there roughly a fifty percent chance per segment of it being stenosed?
Mr.Success' eyebrows were raised considerably ..... by the DAKE 39 report ..... labeling C1 as a common area of stenosis.

C1 is the upper jugular, isn't it? Early on, some IRs were finding stenosis in the upper jugulars, some were not, some were finding it in the azygous, some were finding nothing in the azygous. There has been time to refine the methods.

I think Dr. Siskin presented at the AAC symposium about upper jugular stenoses, didn't he? I am ready for the videos. :D
Last edited by Cece on Wed Jul 27, 2011 12:29 pm, edited 1 time in total.
Family Elder
Posts: 9300
Joined: Mon Jan 04, 2010 4:00 pm

Postby Cece » Wed Jul 27, 2011 12:21 pm

CureOrBust wrote:
So...the focus of the paper is the comparison of MRV to actual venography. The paper is not CCSVI centric, so to speak. It is more about evaluating venous stenosis and abnormalities on MRV and venogrpahy.
The paper may not be CCSVI, but I think there is a subtle but significant change in the tide, in that from the small excerpts you have provided, Venous abnormalities appear to be almost assumed to be related to MS, so the paper only needs to deal with which method is best to find it. And this is in a publication that is respected by the general medical fraternity, not a fringe publication. I think the fact that this made it through peer review is a testament that this is starting to become mainstream. :)

We are gaining traction, so I've heard. :D
I think you are right, CureOrBust, it is a very good sign.
Family Elder
Posts: 9300
Joined: Mon Jan 04, 2010 4:00 pm


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service