This Is MS Multiple Sclerosis Community: Knowledge & Support

If you have tinnitus, is it always present or does it go away sometimes and/or does it diminish in intensity sometimes?

Mine is there most of the time, although it diminishes in intensity at times and goes away completely on rare occasions.

What I hear is a high pitched tone in both ears. The pitch and intensity can vary. Usually I am able to ignore it.

Mine is always there. It however lowers in intensity during the day due to the noise coming from external sources. However, when I lie down during the night it comes to play... especially at the right side.

I was treated for CCSVI, had blocked left jugular vein, balooned it and its impact on the left ear tinitus was noteworthy. Still must have something left on the right side.

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Mine is pretty much all the time. I also have pulsatile tinnitus in my left ear when I lay on my right side. I recently purchased a little cheap fan that helps knock out the sound completely when I am trying to sleep.
The tinnitus however is with me throughout the day.

From what I've read about it, pulsatile tinnitus is a pulsating sound that is sometimes in sync with your pulse. If you don't mind me asking is yours timed with your pulse? The article I read said this can be due to deformations in the arteries or veins. That sounds sort of like CCSVI.

Yes, it is the heartbeat that I am hearing. It is quite annoying. I hear alot about people who have ms that also have tinnitus, but I don't hear too often that they also have pulsatile tinnitus.
I do have ccsvi, I had the procedure in Bulgaria last summer and the tinnitus seemed to be a little quieter for awhile but re-stenosed.
I have been seeing an upper cervical chiropracter (atlas adjuster) and both the tinnitus and pulsatile tinnitus have become a little calmer (not gone, but not so loud)

A long time (several years) ago I had *bad* pulsatile tinnitus that was *not* a heartbeat. That was what was so annoying about it. It was kind of a leather-mallet sort of hammering. It went away, or it would have really driven me seriously insane, and probably killed me with sleeplessness.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
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My tinnitus comes and goes. I usually notice it when I'm getting ready for bed/rest. It also comes on either the left or right side - not consistent there.