This Is MS Multiple Sclerosis Community: Knowledge & Support

My heart goes out to the Hubbard family. If you do not know their background, they became involved with CCSVI research when their son Devin was diagnosed with MS. He was treated for CCSVI in May of 2010. He was symptom free for 14 months.

Unfortunately he had a relapse recently. He went in for retreatment by Dr. Ponec and he had restenosed.

Arlene talks about it here:
http://tinyurl.com/66edbtq

She said he wanted this news shared in the interest of full disclosure, which is why I am reposting it here. I have to assume he had access to follow-up doppler ultrasounds or MRVs but the restenosis was not caught? This is why I don't like the idea of following up only when symptoms return. If at all possible you want to be ahead of the game. And it is not good if follow-up ultrasounds are not finding the restenosis. Despite being retreated, Devin's numbness has not yet abated, and I know how upsetting that is when you want to be fully well and back to normal but it's not happening (yet).

Cece, thanks for the heads up. Wife went to the Hubbard facility for MRV
last March to where we met Devin. He is one heck of a Nice guy!

According to FB Arlene say he had an attack after being yelled at which
caused him stress. This seems to be one of the hallmarks in causing a
MS relapse. Makes you wonder how stress affects the Venous blood flow.


Bob