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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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milesap
PostPosted: Fri Jul 22, 2011 5:35 am 
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http://www.ccsvi-tracking.com/aboutUs.php
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civickiller
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PostPosted: Fri Jul 22, 2011 9:57 am 
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the restenosis rate seems higher
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MegansMom
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PostPosted: Fri Jul 22, 2011 10:56 am 
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I wonder if patients that feel well remember to put data in. In fact I will remind my daughter to update her info.

I think initially people put the data in and then they remember to if they have problems but I wonder if the ones that feel terrific take the time?

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Cat (Catherine Somerville on FB)
MegansMom
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-
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Cece
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PostPosted: Fri Jul 22, 2011 11:12 am 
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I am unsure about the value of the tracking graph because it is not a random sampling.
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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