I think Joan is also a great choice, and it does not seem that it needs to be one person, but perhaps a few could expose the various experiences.
Yes, Zamboni referred me to see Salvi first thing, and the day we went up to see Salvi at the Bellaria Clinic in Bologna (three hr drive from Umbria and my right eye was crossed over, which made being in the car a pain, so I ended up with a patch so I would not see double!) we called Zamboni who is in Ferrara right then and there from Salvi's office to see about the Liberation. But they had just been stopped! Literally that week. So Salvi put me on Cortisone for five days.
This did halt the relapse, but because I was in the middle of one, they were hoping to perform angioplasty to see if it would halt the attack....
We were also interviewed by CBS news, Dec 7th to be exact, the day we drove to Ferrara to meet Zamboni (I had had the cortisone on the Thanksgiving weekend and was by then doing a bit better) and the news team was there to interview Z and Salvi, and we just 'happened' to be there (Salvi is a wizard and had planned for us to be there when CBS was there because, I think, we are Americans and my husband is a published author) and they were looking for exposure, which we wanted to give them, like Jeff and Joan.
Unfortunately, CBS backed out and never aired the piece, as we all know.
That's a bit of the history.
Whatever happens, whoever speaks, it's a great idea!