The internet access
The Google search for "CCSVI multiple sclerosis" yielded over 650,000 results. The top result was a link to a clinic offering CCSVI evaluation services and MS liberation therapy (www.ccsvi-online.com), followed by the CCSVI Foundation (www.ccsvifoundation.org), which on its front page, reported on a patient who was denied the "liberation" treatment and filed a human rights complaint. Other links on the initial Google page led to pages explaining that there was a plot among neurologists to avoid referring patients to vascular surgeons because neurologists refused to believe in CCSVI (www.multiplesclerosissurgery.com). In addition, links to www.youtube.com presented over 700 videos of successful "liberation" treatment. The search on Yahoo! yielded over 80,000 results, including www.ccsvi-multiple-sclerosis.com, in which doctors willing to perform the liberation treatment could be located around the world, and www.ccsvi-for-ms.org, which advertised using the slogan "Liberation from Multiple Sclerosis - Free yourself".
Both Google and Yahoo! have several links accessing Facebook. The social network www.facebook.com contains dozens of discussion forums and social/charity events relating to CCSVI and MS. The largest CCSVI community on Facebook has nearly 30,000 participants. Although several participants are dubious about "liberation" treatment or have undergone it without success, the tone of the discussion is extremely optimistic.
TIMS is the birthplace of the CCSVI internet movement. Seriously, we've got creds. When I google "CCSVI multiple sclerosis," we pop up on the first page. I would've liked a mention!
During the European Congress of Multiple Sclerosis (ECTRIMS) in October 2010, in Gothenburg, Sweden, Zamboni explained that the term "liberation" originated from a radiologist talking about blood vessels with insufficient blood flow. The talk of "blood flow liberation in the vessel" mutated into "liberation treatment for MS" in very little time.
And that is where the term 'liberation' came from...but it's a media term, particularly in Canada. We are not responsible for that term. We are, however, responsible for the term, "Liberati," which remains very catchy.