Chiari and MS

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Chiari and MS

Postby coach » Mon Aug 01, 2011 9:53 am

I have been confused about the course my MS has followed. I was first diagnosed in 1984 after the birth of my first child. Spinal fluid had O bands, evelated MBP, and IgG synthesis rate which are all MS indicators.. Unremarkable CT scan then. Followed by 14 years of being asymptomatic. Some symptoms got progressdively worse starting in 1998 but still functioning resonably well untill 2009. Never diagnosed with an RR form of the disease. I seemed to go from no symptoms to gradually worse symptoms. Just wondering where I fit in the MS picture. Had CCSVI procedure in 2009 and had good improvements (mainly energy levels) for about 6 to 8 months. My energy levels still seem good, but motor skills seem to continue to go downhill. In fact I can't say that motor skills improved after CCSVI procedire. They may have slowed down slightly. Now I'm using a walker and don't drive much anymore. I've looked at the Chiari One website. My daughter (23 years old) also had postpartum optic neuritis. I guess I'm wondering whether she has stenosed veins or an inherited skull design that may predispose her to MS like symptoms or Chiari. From reading on some of the Chiari websites one can have Chiari without necessarily having herniation of the cerebellar tonsils through the foramen magnum which makes it almost impossible to diagnose. From reading Dr. Michael Flanagan's book The Downside Of Upright Posture MS patients seem to have a higher incidence of Chiari. So I guess I'm wondering if I could have both and that my motor skill deterioration may be more related more to Chiari. Dr. Thomas Milhorat's Chiari Redifined Study found a higher correlation between CINE mri than actual herniation of the cerebellar tonsils. Has anyone else had experience with this?
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Postby Thekla » Tue Aug 02, 2011 2:28 pm

very interesting stuff---I've also been confused with my progression. Maybe, yet again, there are more puzzle pieces to consider. I've been treated twice with improvements in fatigue, cogfog and more recently bladder and spasticity--hard to quantify so far but so far not much in 'motor' improvements. But any improvements are wonderful.
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