ozarkcanoer wrote:I used to post here on a regular basis starting in 2008. My husband and I are active supporters of the BNAC research, financially and otherwise. We still are. I had the CCSVI procedure performed last August (2010) and again March (2011) and am in the most unlucky situation of having occluded stents in both my IJVs. There is a psychology to these sorts of things. Since there is no treatment for my situation I have become very subdued. I did not go abroad. My IR for my procedure is considered to be one of the best in his field (another IR told me he is in the top 5). My most distressing symptoms, terrible pain, was releived by the procedure and I still feel better than before. I am just flummoxed and am trying to live from day-to-day with my decision to go with stents and the unfavorable outcome. I suppose I should post on the tracking sticky but my hesitation to do so is an example of a negative result dampening my enthusiasm. I can imagine others are in the same situation.
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