AN INTERESTING STORY

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

AN INTERESTING STORY

Postby dania » Tue Aug 09, 2011 12:04 pm

User avatar
dania
Family Elder
 
Posts: 1088
Joined: Wed May 12, 2010 3:00 pm
Location: St Lazare Quebec

Advertisement

Postby civickiller » Tue Aug 09, 2011 3:52 pm

I wonder if she could benefit from upper cervical care
User avatar
civickiller
Family Elder
 
Posts: 557
Joined: Thu Feb 04, 2010 4:00 pm
Location: Hawaii

Postby CD » Tue Aug 09, 2011 10:08 pm

I wonder if LDN would help her? :D
CD
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 4:00 pm
Location: USA

Postby Cece » Tue Aug 09, 2011 10:14 pm

I would think a repeat procedure would help. Since the first one worked but she lost what improvements she had.

I added this to the improvements thread and I noticed which doctor was featured in the article!
I managed to get the recommendation of a couple of Canadian doctors working on the periphery of the CCSVI story. They referred me to Dr. Salvatore Sclafani, the former chief of radiology at a Brooklyn, New York, hospital.

He would be the doctor’s doctor. Thanks to Google, I found he had left the hospital after administrators shut down his procedures in the wake of the death of the Ontario man in Costa Rica in the fall. He was all over the Internet, speaking at conferences and answering questions on a general website devoted to MS. He seemed to be in his early 60s... and apparently indefatigable. I emailed him and was told the clinic at which he was working could fit me into a cancellation in just a few weeks. What ensued was a frantic period on the phone and on the computer trying to deal with flights, hotels and a clinic staff that seemed to change my appointment every day.

As my stomach lurched with each new stumbling block, I thought longingly of the easy one-stop-shopping of medical tourism.

What did impress me was the doctor’s evident interest.

Sclafani always replied to any email I sent within hours.
Cece
Family Elder
 
Posts: 9024
Joined: Mon Jan 04, 2010 4:00 pm

Postby CD » Tue Aug 09, 2011 11:53 pm

Perhaps Cece another procedure would work, but not everyone can afford the cash, again and again. She had to borrow from family.

Either coming from Canada, or other countries, or if they are in the states here, their insurance might not/won't pay. She had to borrow from family to travel.

I could pawn my kids but they are too old. :lol:
CD
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 4:00 pm
Location: USA


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service