Massive study disputes Zamboni theory of multiple sclerosis

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby 1eye » Sun Aug 14, 2011 10:07 am

I was going to ask, why do we have to put up with topic titles that are so bellicose, volatile, inflammatory, deliberately misleading, even? But I realized that the people who matter and get read in this forum are provoked to argue, and end up interacting with each other, so the whole thing has some sort of built-in governance, that depends on everyone's good natures. I suppose that is one case where the medium is part of the message, or something.

Anyway, I was just thinking, maybe one of the reasons for the high rate of restenosis is leaflets coming back from the dead, and maybe we are in a hurry to just balloon the heck out of whatever is obviously right now getting in the way of the flow, without stepping back and planning a more lasting fix. I don't know. Is anything more lasting going to be tried, or are we happy to just get periodic retreatments?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby Jugular » Sun Aug 14, 2011 10:47 am

1eye wrote:I was going to ask, why do we have to put up with topic titles that are so bellicose, volatile, inflammatory, deliberately misleading, even? But I realized that the people who matter and get read in this forum are provoked to argue, and end up interacting with each other, so the whole thing has some sort of built-in governance, that depends on everyone's good natures. I suppose that is one case where the medium is part of the message, or something.

Anyway, I was just thinking, maybe one of the reasons for the high rate of restenosis is leaflets coming back from the dead, and maybe we are in a hurry to just balloon the heck out of whatever is obviously right now getting in the way of the flow, without stepping back and planning a more lasting fix. I don't know. Is anything more lasting going to be tried, or are we happy to just get periodic retreatments?
I think it is going to take more than interaction. To get the job done it will also require co-operation. There is a fat chance of that when we're getting all this polarized posturing by our researchers. A case in point is announcing a medical finding by saying that it disproves CCSVI as the sole cause of MS. Because it's not the sole cause we can close the books on this CCSVI hysteria and all these false reports of improvements. No need for clinical trials. No nachos for Zamboni. After all they have at last found a cure for MS - selective abortion.

I'm sure glad I was lucky enough to get CCSVI treatment when I did. It's the only time I've experienced any kind of lasting victory in my decades long fight against this disease.

They're gonna kill all this CCSVI stuff and throw us all under the genetics bus. Our only viable option now is to continue the innefective drug warfare against our autoimmune systems.
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Postby 1eye » Sun Aug 14, 2011 11:13 am

That's what pharmasuitables manufacturers would like you to believe. And the Harperites have successfully taken things out of the hands of activists and placed them in the slow-moving federal government arena where changes take generations, and must survive the best efforts, of provincial and federal politicians, bureaucrats, and hundreds of thousands of linear feet of stacks of rulebooks, to kill them. Not to mention peer review, trial timelines, etc.

"God bless the child that's got his own." - Billie Holliday, Arthur Herzog Jr.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Postby Cece » Sun Aug 14, 2011 11:31 am

1eye wrote:I was going to ask, why do we have to put up with topic titles that are so bellicose, volatile, inflammatory, deliberately misleading, even? But I realized that the people who matter and get read in this forum are provoked to argue, and end up interacting with each other, so the whole thing has some sort of built-in governance, that depends on everyone's good natures. I suppose that is one case where the medium is part of the message, or something.

Everyone in this forum matters and gets read.... ;) (in part because there is no 'hide posts by this user' option). Yeah, it would be nice if the bellicosity could be turned down a notch. "I disagree with you but I'm pretty sure you're not Hitler," to quote a sign from the Daily Show's moderates march on Washington last year.
Anyway, I was just thinking, maybe one of the reasons for the high rate of restenosis is leaflets coming back from the dead, and maybe we are in a hurry to just balloon the heck out of whatever is obviously right now getting in the way of the flow, without stepping back and planning a more lasting fix. I don't know. Is anything more lasting going to be tried, or are we happy to just get periodic retreatments?

I think the doctors are trying but it's a hard nut to crack.
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