MrSuccess wrote:.... over in the " drug pipeline " section of TIMS ..... Rainer has brought forth a very interesting gene therapy article.
what Mr.Success finds most telling was that these patients actually got much sicker - self described as the worst flu - ever in their lives ...
then the great results .
I believe this is called " herxing " ?
hmmmm ..... this has Mr.Success wondering if those few cases of pwMS reported as doing worse after CCSVI treatment .........
may be having a similar situation ?
Does this explain the singular case Dr.Zamboni reported ?
Either way ..... the gene therapy story for treatment of leukemia ....is certainly cause for excitement.
Note the similar situation experienced by these medical pioneers .... a lack of funding to explore and expand their great scientific work .....
Sound familiar ?
luca75 wrote:Hi everybody,
my name is Luca I'm writing from Italy (Pisa) and I've just registered to this very interesting and stimulating forum.
Does anyone know something about the inital rate of relapses associated to the two groups ? I think it's importanto for the end sudy comparison to have homogeneus initial paramenters. Thank you !!!
marcstck wrote:As such, the Herxheimer reaction has nothing to do with gene therapy or CCSVI venoplasty.
Cece wrote:marcstck wrote:As such, the Herxheimer reaction has nothing to do with gene therapy or CCSVI venoplasty.
There have been a few reports of patients with Lyme disease and CCSVI who, after CCSVI venoplasty, experience a severe Herxheimer reaction.
This would suggest that CCSVI venoplasty is as effective as antibiotics at reaching and killing Lyme? Maybe.
cheerleader wrote:This thread is on the 15 patient combined Italian/American PTA trial. There were 2 groups, delayed and immediate treatment, as well as a control group. PTA showed significant improvement in MS symptoms and slowed relapses and lesions.
For a look at the Compston genetic study and Dr. Ferlini's breakdown of CCSVI and MS genes on the HLA locus already associated with MS, here's some more info.
Perhaps the genetic discussion could migrate there?
Again, no need to argue or name call.
One-third of the genes identified in the study are also associated with other autoimmune diseases like Type 1 diabetes and Crohn’s Disease.
MrSuccess wrote:I do hope the unfortunate singular pwMS in Dr.Zamboni's latest study get's the best care possible.
As much as I admire Dr.Zamboni .... I must not forget that this is a TEAM effort ....... and this latest research effort list's those on that all-star team ...... which include THREE neurologist's ....... Dr.Silvi.... Dr. Zivadov ....Dr.Bianca-Weinstock .......
...... and all those wonderful people Dr.Zamboni has included in his historic discovery - CCSVI-. ...... yet remain nameless.They work quietly in the background.
Dr.Sclafani say's 2 years ......... Mr.Success say's less-than ..........
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