PARKINSON'S LINK TO CCSVI

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

PARKINSON'S LINK TO CCSVI

Postby dania » Sat Aug 13, 2011 6:39 am

http://www.ccsvi-center.com/Parkinson_and_CCSVI.htm
"Iron deposits in the basal ganglia in Parkinson’s patients accumulate upstream from the venous drainage route. In some of these patients, venous stenoses, as described in CCSVI, have been identified."
Last edited by dania on Sat Aug 13, 2011 7:07 am, edited 1 time in total.
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Postby Cece » Sat Aug 13, 2011 7:00 am

No link established yet but they are looking for it.
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Postby AlmostClever » Sat Aug 13, 2011 8:02 am

Don't mean to sound like a broken record but....

The more research I do the more I discover how Lyme bacteria causes vascuar issues.

In the Lyme documentary film "Under Our Skin", one researcher found Lyme bacteria in 7 of 10 Parkinson's brains from the Stanford's (I believe was the school) brain bank.

I know it's not the case for all but worth checking out. I believe that as well as being congenital, CCSVI can be caused by damage to the atlas and maybe by bacterial infection that inflames blood vessels.
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Atlas link yet again-very interesting indeed

Postby fee001 » Sat Aug 13, 2011 8:23 am

I do my own research, and find my own answers Its good to talk
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Postby Cece » Sat Aug 13, 2011 8:26 am

Damage to the atlas would be a physiological secondary CCSVI, right, being constricted by the atlas in some way but if the atlas were pushed back into place, all would be normal?

Secondary CCSVI would be external constriction from bones and muscles; primary ccsvi would be valve or vein malformations. Both would have the effect of outflow obstruction....

It might be that in pwMS who have primary CCSVI, any impact from a secondary CCSVI is magnified because of the primary CCSVI.
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Postby civickiller » Sat Aug 13, 2011 9:51 am

all might be straight but the muscles holding the atlas in place want to pull it back to its spot it was before, thats why ive been seeing a ucc dr for 8 months already, slowly my atlas is slowly pulling less out of alignment.

after my first couple adjustments i felt normal, i still had to walk with a cane but improved walking, no heat sensitivity, idk if it was increased blood pressure or less nerve pressure
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Postby fee001 » Sat Aug 13, 2011 12:08 pm

Civickiller,

I believe that everything gets too complex, too much professional gargon goes right over my head. I find it all a little tiresome. When the same someone jumps in yet again to speak out to disprove a theory with absolutely no proof at all, it stops others from perhaps having a point of view or some input so then debate can happen, its really negative and frustrating and just kills any variety debate

I try so hard to keep things simple, today I feel like giving up because they always come along and complicate it all again. with tech speak. it just confuses newbies, and just is a futile excercise. I may just stick to my blog for a while its simpler and less hard work having to constantly fight ones corner.

A lot of things come back to the Atlas, my blood flow immediately increased, totally unexpected.

There is no fact as to what causes ccsvi, I wish people would consider the Atlas as a serious contender.

But hey you and I know the possitives, I took ten years or so to twist it is taking time to twist back and I am a bit grumpy today because I hurt, but at least I know one day I wont hurt at all.

Fiona
I do my own research, and find my own answers Its good to talk
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Postby civickiller » Tue Aug 16, 2011 2:07 am

Fiona,

im still posting to get more people to try UCC to help them. The more people doing UCC, the more people we'll have talking about how its helped them.

its all up to people and their decisions but if they feel some of the benefits i felt, they would believe in UCC

people dont believe in things until many people have already have tried it and worked for them. if those that have tried it dont come here and talk about it then only a few will try it, good and bad, if any bads

not only parkinsons but also Alzheimer too but probably more. i think UCC can prevent all these diseases and help if you have it already
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Postby PointsNorth » Tue Aug 16, 2011 11:40 am

civickiller wrote:Fiona,

im still posting to get more people to try UCC to help them. The more people doing UCC, the more people we'll have talking about how its helped them.

its all up to people and their decisions but if they feel some of the benefits i felt, they would believe in UCC

people dont believe in things until many people have already have tried it and worked for them. if those that have tried it dont come here and talk about it then only a few will try it, good and bad, if any bads

not only parkinsons but also Alzheimer too but probably more. i think UCC can prevent all these diseases and help if you have it already


sorry, can I ask what UCC is?
Albany 2010. Brooklyn 2011
Calcitriol+D3 2013-
Hurry up and wait.
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Postby Cece » Tue Aug 16, 2011 11:59 am

Upper cervical care chiropractry.

I just looked through the main forum list of treatments (CCSVI, LDN, Copaxone, Tysabri, Diet, Stem Cells, Antibiotics, etc) and UCC isn't on there but it seems to have enough supporters that it could be.
There is no fact as to what causes ccsvi, I wish people would consider the Atlas as a serious contender.

CCSVI is mostly a condition of malformed valves. This has been seen with intravascular ultrasound, echo images taken inside the veins. Unless you can tell me how the atlas is causing jugular valves to become malformed with stiff leaflets, I don't think you can support this statement.

This is not to say that the atlas can't cause problems or that adjusting it can't cause relief. But I have yet to see anyone saying that the atlas can cause valves to malform.
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Postby jean-la-grenouille » Tue Aug 16, 2011 1:07 pm

CCSVI is mainly due to stenoses and valves dysfonction. In some case, it is due to postural causes such as muscle compression. Some may benefit from UCC and not from vein dilatation, others may have no success with UCC and experience a relief of symptomes with an angioplasty...
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Postby cheerleader » Tue Aug 16, 2011 4:32 pm

It was only two years ago that I asked NHE and the administrators of TIMS for a CCSVI forum. And they gave it to us.

Civic and Fiona, Start an upper cervical care forum.
Almost clever, start a Lyme forum.
Ask the administrators, but be polite. Don't demand, request.
The other thing that helps is having doctors willing to do the research.
That's why I contacted Dr. Cooke and Dr. Dake at Stanford to look into CCSVI, and how my husband was treated.
The CCSVI forum is one of 30 on TIMS.
There are many, many alternative ways of treating and studying this disease.
Instead of being frustrated and angry on the CCSVI forum, start a new forum. Start a Facebook page. Find doctors. Start a non for profit. Be positive, not negative. The world needs your positive energy. But it won't be shared by griping on the CCSVI forum.
I did not gripe, I just started a CCSVI thread on the general forum and it grew. I didn't post on other forums, just kept it simple. Here's the original thread which was on the general discussions forum and became the first thread on the CCSVI forum.
http://www.thisisms.com/ftopict-6488.html
respectfully,
cheer (a once newbie, too)
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby scorpion » Tue Aug 16, 2011 6:09 pm

Civickiller said:
all might be straight but the muscles holding the atlas in place want to pull it back to its spot it was before, thats why ive been seeing a ucc dr for 8 months already, slowly my atlas is slowly pulling less out of alignment.



Hmmm I have an Atlas downstairs in my library and surprisingly it did contain information on MS but I can not figure out how knowing Jackson is the largest city in MS will provide me any bit of relief from some of these darn symptoms! :?
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Postby AlmostClever » Tue Aug 16, 2011 7:46 pm

cheerleader wrote:It was only two years ago that I asked NHE and the administrators of TIMS for a CCSVI forum. And they gave it to us.

Civic and Fiona, Start an upper cervical care forum.
Almost clever, start a Lyme forum.
Ask the administrators, but be polite.


I get what you're saying Cheer. My posts were intended to suggest a link of Lyme to CCSVI and under an existing Lyme and CCSVI thread.

I believe CCSVI exists, just that there are some secondary components that will take time to fully understand such as Lyme and upper cervical care.

I know it's hard sometimes to adhere strictly to forum and thread topic! We all get sucked in every direction!
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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Postby AlmostClever » Tue Aug 16, 2011 7:54 pm

AlmostClever wrote:Don't mean to sound like a broken record but....

The more research I do the more I discover how Lyme bacteria causes vascuar issues.

In the Lyme documentary film "Under Our Skin", one researcher found Lyme bacteria in 7 of 10 Parkinson's brains from the Stanford's (I believe was the school) brain bank.

I know it's not the case for all but worth checking out. I believe that as well as being congenital, CCSVI can be caused by damage to the atlas and maybe by bacterial infection that inflames blood vessels.


I intended this to show how how Lyme might have induced the CCSVI which in turn induced the Parkinson's. (It might have been Alzheimer's brains mentioned - I can't remember! but if we're gonna link CCSVI to Parkinson's we have to start somewhere!)
If you can't explain it simply, you don't understand it well enough. - Al Einstein
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