10 months after a trip to Albany and getting some results (fatigue, cogfog) albeit for only 8 days, I thought I would try again. This time in Brooklyn, NY.
Having followed Dr. Sclafani’s thread since day one, I was officially converted after reading about IVUS on several threads. Being able to confirm the location of stenoses while avoiding under/over treatment seemed pretty compelling to me.
After a consult with Dr.S on Thursday (Aug 4th) I prepared to come in early Saturday AM but I did not hit the table until 4pm. Dr.S had a challenge on the Friday which subsequently needed more attention on Saturday morning. My procedure was not case-study material with only garden-variety valvular stenoses found in both jugulars. I got a chance to see IVUS in action.
Got a bite to eat near our hotel and walked 3-blocks home (hotel). I felt as though I could’ve walked another ½-mile but thought I shouldn’t tempt fate.
Next few days were interesting as I had improvement in a variety of areas beyond cogfog & fatigue.
• Spasticity completely resolved (as far as I could tell)
• Cogfog as well
• Fatigue improvement but not as dramatic as in Albany
• No improvement in balance
• Bladder: little or no urgency after beer(s)
• Reduction/elimination of visual disturbance when twisting head
Heat & humidity was troublesome for this westcoast rainforest kid. Along with changing hotels, plane and car travel, the following week was a challenge. If I go back East again it will be in Spring or Fall!
I’ve been back home for almost a week now and my symptom profile is pretty much where it was before embarking for Brooklyn. I will stay in touch with Dr.S and see what he suggests at this point.
Given that I have pre-existing intestinal challenges (MS+Crohn’s Disease) I found the Pradaxa (anticoagulant) very hard on the bowel. I’m continuing to manage by using Imodium twice daily. I would think that others might be having similar problems?
I’ve been pleased with the level of care and attention at both Albany & Brooklyn. I especially appreciated the pre-procedure consult in Brooklyn. It is good to know that Dr.S lives outside our virtual reality but moonlights nonetheless.
Just around the corner from the doctor was a guitar shop and I thought that one could bring along their guitar to have its neck “set up” while having their other
neck worked on
Albany 2010. Brooklyn 2011
Hurry up and wait.