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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Squeakycat
 Post subject: Neuro Sense Poll
PostPosted: Wed Aug 24, 2011 6:38 am 
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The neuros are doing a poll on the goal of the CIHR trial of CCSVI.

Right now, it is two to one against even doing a study!

Here is a link to the NeuroSense Poll

Have fun. I don't think they were expecting patients to participate. :roll:
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Cece
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PostPosted: Wed Aug 24, 2011 8:31 am 
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I just voted and it's at 55% "all of the above" (Determining safety of venoplasty, Identifying patient-reported outcomes of venoplasty, Validation of CCSVI criteria and identification of patients meeting those criteria, Determing if venoplasty results are beneficial and sustained) and only 24% "none of the above - I don't agree with the CIHR decision."

The opposite of what it was before. Now it is more than 2 to 1 in favor of the study. :D
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Squeakycat
 Post subject: Amazing
PostPosted: Wed Aug 24, 2011 9:04 am 
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Amazing what happens when patients get involved in their care and don't just leave it all up to their neurologist? :roll:
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bigfoot14
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PostPosted: Wed Aug 24, 2011 9:48 am 
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"all of the above" is now 57%

How did that happen?? :twisted:
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Squeakycat
 Post subject: It was Devil Boy
PostPosted: Wed Aug 24, 2011 9:50 am 
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The kitty in the picture is DeeBee, short for Devil Boy. Maybe he did it. :roll:
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MarkW
 Post subject: My Vote
PostPosted: Wed Aug 24, 2011 10:10 am 
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Great find Dr SqueakyCat. Just voted 'all of above' its now 58.62%.
Canadians please vote and others have fun.
MarkW

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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html


Last edited by MarkW on Wed Aug 24, 2011 10:41 am, edited 1 time in total.

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civickiller
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PostPosted: Wed Aug 24, 2011 10:28 am 
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all of the above 57.83%
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ErikaSlovakia
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PostPosted: Wed Aug 24, 2011 10:56 am 
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Location: Slovakia, Europe
all of the above 59,78%
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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mavis
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PostPosted: Wed Aug 24, 2011 12:17 pm 
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59.26% after I voted.
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Cece
 Post subject:
PostPosted: Wed Aug 24, 2011 1:52 pm 
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"Error 404"
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NZer1
 Post subject:
PostPosted: Wed Aug 24, 2011 4:34 pm 
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"Neurology the worst stenosis in MS knowledge". Nigel Wadham 2011
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PointsNorth
 Post subject:
PostPosted: Wed Aug 24, 2011 4:35 pm 
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same error

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Albany 2010. Brooklyn 2011
Hurry up and wait.
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HappyPoet
 Post subject:
PostPosted: Wed Aug 24, 2011 5:08 pm 
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The poll has been removed from the home page and doesn't come up in the search function. I wonder if they found out about us and if the results will ever be published. ;)
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David1949
 Post subject:
PostPosted: Mon Aug 29, 2011 6:16 pm 
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"Neuro Sense" sounds like an oxymoron to me.
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leetz
 Post subject: error.....
PostPosted: Mon Aug 29, 2011 11:22 pm 
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Posts: 287
ERROR...UNREAL!

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GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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