This Is MS Multiple Sclerosis Community: Knowledge & Support

Yep, i'm not a doctor

I did not mean to say that larger stents are better, but the opposite...my stent is small and at a place that doesn't move much (as far as i know) and it's 'protected' by the collar bone,,.i just think that that influences the 'success' of a stent.

The info is on http://www.balton.pl, the description says the Neptun is an artery stent...

another point; how long will the stent 'live'....5 years, 10 years.....that worries me a bit..

Robni,

Lets hope that well within 5 years they come up with a cause, and then that can be addressed.

Fiona

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I do my own research, and find my own answers Its good to talk

Did you say the stent was 3 cm? Wouldn't that be on the large side? The average jugular is 1 cm although it varies (I have one jugular that is under 1 cm and one that is 1 1/2 cm.)

If your stent is in the jugular and near the collar bone, it is most likely at the usual spot, by the valves near where the jugular connects to the innominate vein.

Hi Cece,

It's 3CM in LENGTH, 16mm width ( there's the catch, )

Lol, that's more logical then!!

Right, funny...thinking in different directions...ah, there is more in that sentence than only length/width

My synopsis:
55% of cases with stents show restenosis after 6months.
33% of total cases show restenosis after 6 months.
Only small improvements seen. Predictable with high restenosis rate.

I conclude that the Tychy group is not acheiving good results from balloon venoplasty. Stenting at this centre should be avoided by pwMS.

MarkW

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Neuro Endocrinol Lett. 2011 Aug 5;32(4). [Epub ahead of print]
An endovascular treatment of Chronic Cerebro-Spinal Venous Insufficiency in Multiple Sclerosis patients - 6 month follow-up results.
Kostecki J, Zaniewski M, Ziaja K, Urbanek T, Kuczmik W, Krzystanek E, Ziaja D, Korzeniowski T, Majewski E, Hartel M, Swiat M, Sioma-Markowska U.
Source

Department of Surgery, Medical University of Silesia, District Specialist Hospital, Tychy, Poland. kosteckj@op.pl.
Abstract
OBJECTIVE:

In this study, the mid-term results (6 month follow-up) of the endovascular treatment in patients with Chronic Cerebro-Spinal Venous Insufficiency (CCSVI) and multiple sclerosis (MS) were prospectively evaluated.
METHODS:

Thirty-six patients with confirmed MS and CCSVI underwent endovascular treatment by the means of the uni- or bilateral jugular vein angioplasty with optional stent placement. All the patients completed 6 month follow-up. Their MS-related disability status and quality of life were evaluated 1, 3 and 6 months postoperatively by means of the following scales: Expanded Disability Status Scale (EDSS), Multiple Sclerosis Impact Scale (MSIS -29), Epworth Sleepiness Scale (ESS), Heat Intolerance scale (HIS) and Fatigue Severity Scale (FSS). For patency and restenosis rate assessment, the control US duplex Doppler examination was used.
RESULTS:

Six months after the procedure, restenosis in post-PTA jugular veins was found in 33% of cases. Among 17 patients who underwent stent implantation into the jugular vein, restenosis or partial in-stent thrombosis was identified in 55% of the cases. At the 6 month follow-up appointment, there was no significant improvement in the EDSS or the ESS. The endovascular treatment of the CCSVI improved the quality of life according to the MSIS-29 scale but only up to 3 months after the procedure (with no differences in the 6 month follow-up assessment). Six months after the jugular vein angioplasty (with or without stent placement), a statistically significant improvement was observed only in the FSS and the HIS.
CONCLUSIONS:

The endovascular treatment in patients with MS and concomitant CCSVI did not have an influence on the patient's neurological condition; however, in the mid-term follow-up, an improvement in some quality-of-life parameters was observed.

PMID:
21876515
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Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html

too late

You , me and how many others?
My stent is now pinched and bent at one end! Go figure. I must have super strong veins, in order to do that.

arterial side, but interesting research on stents for stroke: http://www.medicalnewstoday.com/articles/234114.php