NEW! Dr.Zamboni video- lower EDSS at 3 years

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby cheerleader » Tue Sep 06, 2011 4:28 pm

He discusses many new topics, including significant reduction of EDSS scores in patients after 3 years of treatment, and open vein surgery in non-responders to venoplasty.

http://www.veithsymposium.org/video2010/video12.html

and here's a quick video of my husband Jeff...out in 90 deg. heat in a black wool suit, on the red carpet in Venice. This would have been impossible before venoplasty. Jeff's life has changed, thanks to Dr. Zamboni's research. He continues to heal, no MS progression, no relapses, only improved energy and health, 2 and half years later.
http://www.gettyimages.com/detail/123966191


cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 5031
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Advertisement

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby cheerleader » Wed Sep 07, 2011 10:16 am

This is a new video of Dr. Zamboni....the man who discovered CCSVI.
He discusses the improvements of patients 3 years after treatment.
It's 5 minutes long, highly recommended.
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 5031
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby Jugular » Wed Sep 07, 2011 12:36 pm

cheerleader wrote:He discusses many new topics, including significant reduction of EDSS scores in patients after 3 years of treatment, and open vein surgery in non-responders to venoplasty.

http://www.veithsymposium.org/video2010/video12.html

and here's a quick video of my husband Jeff...out in 90 deg. heat in a black wool suit, on the red carpet in Venice. This would have been impossible before venoplasty. Jeff's life has changed, thanks to Dr. Zamboni's research. He continues to heal, no MS progression, no relapses, only improved energy and health, 2 and half years later.
http://www.gettyimages.com/detail/123966191


cheer

Thanks Cheer. It is nice to hear from the man himself and that your husband is doing well. On a trip to San Diego recently I went for a 5 km walk without my AFO - something that would have been inconceivable 8 months ago before my angio. Indeed, in my pre-lib state a 25 ft walk without my AFO was pretty shaky business. This is thanks to Zamboni and thanks to you in large part for helping bring Zamboni into the spotlight.

Jeff is lucky to have you for a wife and we're lucky that Jeff has you for a wife.
User avatar
Jugular
Family Elder
 
Posts: 375
Joined: Mon Dec 21, 2009 4:00 pm

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby CD » Wed Sep 07, 2011 10:14 pm

Cheer, both you and your husband are amazing. You with the voice of an angel and Jeff with the sounds of one. I applaud both of you. Just had to mention this since I am so impressed.
TG, he is doing so well MS wise, and married to a strong woman to back him up. Kudos!
CD
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010
User avatar
CD
Family Elder
 
Posts: 217
Joined: Sun Dec 19, 2010 4:00 pm
Location: USA

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby cheerleader » Thu Sep 08, 2011 9:27 am

thanks, Jugular and CD.
Glad to hear you're doing well, jugs...walking, moving.
I'm so proud of Jeff. He's been working hard to maintain good flow, using everything he can. Great diet, exercise, lifestyle and attitude. And regular follow up with his IR. He still has MS, and some days are better than others, but his lack of progression and healing inspires me to spread the word.

Dr. Zamboni's patients are still showing improvements at 3 years, which is astounding (!). He has been able to see them regularly, retreat if necessary, and be a part of their ongoing care. This is the only way forward. I hope that medical tourism and lack of follow up doesn't stop the research before protocols are established. I hope that people looking for a "miracle cure" realize that this is a commitment to a new lifestyle, and a new relationship with the vascular profession...just as you would have with a cardiologist after a heart attack or stroke. As we've learned in the cardiovascular realm, there isn't one pill or one procedure. There's only an ongoing commitment to life, which begins anew each day. Dr. Cooke helped me understand that--
http://www.goodfoodinfo.com/html/CardioCure.html

cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 5031
Joined: Mon Sep 10, 2007 3:00 pm
Location: southern California

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby Cece » Thu Sep 08, 2011 10:14 am

They are still continuing to improve, or they are still maintaining their improvements? Either way it is fantastic.

Time to watch the video. :)
Cece
Family Elder
 
Posts: 9009
Joined: Mon Jan 04, 2010 4:00 pm

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby zinamaria » Thu Sep 08, 2011 1:06 pm

cheer-

Thanks for the video of Z and thank you for posting Jeff as well and although it was a brief glimpse of him, I could tell by his face how well he is; he seems to be glowing, shining skin and relaxed, perhaps handling whatever pressures are there, which is not always easy with someone with MS...very inspiring to keep doing all we can do in our daily lives to keep ourselves well.
Wool suit in 90 degree weather! That is impressive.

z
User avatar
zinamaria
Family Elder
 
Posts: 296
Joined: Fri Dec 04, 2009 4:00 pm

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby magoo » Thu Sep 08, 2011 5:51 pm

Cheer/Joan,
When you started the CCSVI forum here and began informing the MS community about Zamboni, many lives changed, including mine. This was a very helpful, supportive and informative place. It was a pleasure to come here and talk with others who were interested in CCSVI and who were on their way to treatment. I happily learned so much, and was one of the first treated in the US. We all kept up with each other and offered support. It was a special place. CCSVI is a giant piece of the puzzle. it has changed the course of our disease and the course of our lives. There is much to learn, but this is the real breakthrough we have all been hoping for. In time, I hope all of the questions will be answered and MS will be forgotten.
Thank you Jeff and Joan.
Thank you Dr. Zamboni!
Rhonda
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
User avatar
magoo
Family Elder
 
Posts: 557
Joined: Thu Sep 10, 2009 3:00 pm
Location: Charlotte, NC

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby ErikaSlovakia » Fri Sep 09, 2011 7:36 am

magoo wrote:Cheer/Joan,
When you started the CCSVI forum here and began informing the MS community about Zamboni, many lives changed, including mine. This was a very helpful, supportive and informative place. It was a pleasure to come here and talk with others who were interested in CCSVI and who were on their way to treatment. I happily learned so much, and was one of the first treated in the US. We all kept up with each other and offered support. It was a special place. CCSVI is a giant piece of the puzzle. it has changed the course of our disease and the course of our lives. There is much to learn, but this is the real breakthrough we have all been hoping for. In time, I hope all of the questions will be answered and MS will be forgotten.
Thank you Jeff and Joan.
Thank you Dr. Zamboni!
Rhonda

The same from Erika :smile:
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
ErikaSlovakia
Family Elder
 
Posts: 1123
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Re: NEW! Dr.Zamboni video- lower EDSS at 3 years

Postby Thekla » Fri Sep 09, 2011 12:29 pm

I think Dr Z's results are wonderful! His patient group did stay on their DMD's throughout the follow up period. I wish he had included more detail about the cases, particularly the 4 non-responders requiring surgery.
User avatar
Thekla
Family Elder
 
Posts: 142
Joined: Sun Jul 04, 2010 3:00 pm
Location: Germany


Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service