This Is MS Multiple Sclerosis Community: Knowledge & Support

Dr. Dake spoke at the CIRSE (cardiovascular and IR society of Europe) conference in Munich today. He was the lone voice calling for clinical trials of CCSVI.
Doepp and Barkhoff present negative studies....saying CCSVI does not exist. The title of Dr. Dake's presentation was "CCSVI is real and we should treat MS patients by venoplasty"

Here are the abstracts from the conference
http://abstracts.webges.com/myitinerary ... 0.facebook

I would like to publicly thank Dr. Dake for continuing to speak out about CCSVI and the necessity of clinical trials, in the face of tremendous pushback from the neurological community.
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

It is amazing that after almost 2 years since word of Zamboni's find was made public that not much has changed the minds of many/most doctors. Very sad.

i just hope that with more clinical trials not run by neurologists, we can see the truth

the discovery of blood restricttion in the neck exists alright, but in my opinion it is not caused by ms or any other neurological condition.

The trouble is the enormous money making potential and the huge expense it could cause to governments, neither side are looking into its cause properly. Fear on both sides is causing hesitation, because it could have devestating consequences as either of them could lose out.

Bottom line is.....money and politics


Fiona

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I do my own research, and find my own answers Its good to talk

Let me add to the thanks as well. Those are some seriously negative abstracts. As you said, he was the lone voice. What I have come to appreciate is that Dr. Dake is established and respected in his field.

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dr. dake went out on the limb in a lot of ways and he's sticking to his guns. i would not think that if he saw no improvements or no merit to ccsvi that he would still be trying to do what he is doing. we all know ccsvi needs more research and that is what we are all after and he's speaking for us.

so with that thought in mind i publicly thank him also.

Hi!

while futile research is conducted in other areas such as parasites and cough mixture and many many other ideas. and ccsVi a creditable entity, research is lacking.

And those that are left, waiting, worrying, deliberating and debating, are us the diagnosed. I believe that they have even got that bit wrong, well definitely in my case but that is a seperate issue,

While we sit and wait in our discomfort and pain, we are made to feel grateful, that at least something is being done for us, We can all see the areas that there needs far more research, so why dont they/

Well I am done waiting being grateful, why should we be. We are pushed to one side and left, while others are paid and very well, to look in the wrong places.

Baffles me!!!


Fiona

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I do my own research, and find my own answers Its good to talk

Freedman Pushes


Dake Pushes Back


I'm not crazy about Dake's title for his CIRSE presentation, but as for CCSVI, I've been following Tim's and the CCSVI research, pro & con since Nov 2009 and as part of the Jury, "I'm still out". No name calling, no tambourine shaking here, just an individual looking for information.

IMO I think it is still too early for either Professor to make these statements. I am finding the continuing venous research fascinating.

I've heard it said that "There is no Bad press". I'm glad for any research that gets printed and read by many keeping MS research visable on on peoples minds. Dialog & exchange of ideas is GOOD.

Respectfully,
Lora

I'm reminded of Dr. Sclafani's statement that, as of March 2011, he is no longer skeptical about CCSVI. "No longer skeptical" and "CCSVI is real" seem equatable to me.

There are many IRs who are saying through their actions that we should treat CCSVI outflow obstructions through venoplasty.

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what a brave man Dr Dake is ..... I see he got all of 8 min to state his case .....

what kind of conference is that ?

well done , my friend ..... well done.


Mr Success

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If the drugs are so good then why is anyone interested in CCSVI?! How I laughed when I read the first abstract!

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3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,

i saw a vascular specialist two years ago.... i was trying to educate the doc (med school prof) about CCSVI. the doc was pretty much ignoring me.... stanford did not impress him... no interest until I mentioned dr dake's work with jeff, marie, etc. my doc said 'dake, michael dake?'. my doc started listening.

so thanks to dr. dake, stellar rep advocating ccsvi.

i am in eastern US