Daflon 500mg tracking thread

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Re: Daflon 500mg tracking thread

Postby Ruthless67 » Sun Oct 02, 2011 7:30 pm

I have been taking Diosmin capsules for 4 weeks now. I started with 6 a day for the first 2 weeks, and now I just take 3 in the morning.

What I have noticed is that my heavy leg syndrome is gone. I don't feel like I'm wading through thigh high water anymore. I still have the same numbness in my hands and feet, swollen ankles and my varicose veins appear the same. I also have a feeling like that of taught or tight hamstrings muscles from the back of my heals to the back of my knees, but what a relief it is to not have to swing those concrete stumps every time I walk.

Lora
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Re: Daflon 500mg tracking thread

Postby David1949 » Sun Oct 02, 2011 7:36 pm

ErikaSlovakia wrote:I was on Daflon exactly 60 days - March and April 2011 (2x a day). I felt absolutely nothing so I stopped. It was original from the Pharmacy. I paid one part and my Health Insurance Company paid for the second part.
But maybe it helps some patients. I do not know...


Was Daflon prescribed for you by a doctor?
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Re: Daflon 500mg tracking thread

Postby David1949 » Sun Oct 02, 2011 7:38 pm

Ruthless67 wrote:I have been taking Diosmin capsules for 4 weeks now. I started with 6 a day for the first 2 weeks, and now I just take 3 in the morning.

What I have noticed is that my heavy leg syndrome is gone. I don't feel like I'm wading through thigh high water anymore. I still have the same numbness in my hands and feet, swollen ankles and my varicose veins appear the same. I also have a feeling like that of taught or tight hamstrings muscles from the back of my heals to the back of my knees, but what a relief it is to not have to swing those concrete stumps every time I walk.

Lora

I'm very happy to hear that it's helping you. I pray that you will continue to improve.

Dave
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Re: Daflon 500mg tracking thread

Postby David1949 » Sun Oct 02, 2011 8:01 pm

dania wrote:Either one is fantastic. I would be happy if I could lift my arms, and that is without weights!


Dania, sorry it's taken me so long to reply to this. It's a tough one to respond to. I feel so sorry for you with the problems you suffer from. I think each of us here feels that way and each of us knows we could end up in the same situation. I can only pray that the answer to MS is found soon, for you and for all of us!
I applaud your efforts to keep on fighting and I wish you the very best.

Dave
Last edited by David1949 on Mon Oct 03, 2011 8:02 am, edited 1 time in total.
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Re: Daflon 500mg tracking thread

Postby ErikaSlovakia » Sun Oct 02, 2011 10:15 pm

David1949 wrote:
ErikaSlovakia wrote:I was on Daflon exactly 60 days - March and April 2011 (2x a day). I felt absolutely nothing so I stopped. It was original from the Pharmacy. I paid one part and my Health Insurance Company paid for the second part.
But maybe it helps some patients. I do not know...


Was Daflon prescribed for you by a doctor?

Yes.
Erika
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Re: Daflon 500mg tracking thread

Postby 1eye » Mon Oct 03, 2011 8:07 am

Regarding remodeling: I forget in which thread this was discussed, but Cece made a comment about if remodeling is what I think it is (or something similar). In all my research, valvular remodeling in veins (and arteries) refers to pathological changes, mostly due to effects of inflammation: stiffening of leaflets, overgrowth of cusps and leaflets, and shortening of the annulus.


I doubt if a supplement can correct thing like defects, missing parts, wrong shape, etc., but maybe it affects things like hypoplasia?
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: Daflon 500mg tracking thread

Postby David1949 » Mon Oct 03, 2011 8:18 am

I've taken Daflon for 3 days now (6 pills total). Nothing to report so far.
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Re: Daflon 500mg tracking thread

Postby Rosegirl » Mon Oct 03, 2011 8:21 am

I've been on Daflon 500 for about 9 days. My legs no longer have that heavy feeling. I'm still stiff and my walking isn't really improved, but it's much easier getting around, just not faster.

I'm trying to move more to see if building muscle strength will help speed up my gait and help with balance.
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Re: Daflon 500mg tracking thread

Postby dania » Mon Oct 03, 2011 8:35 am

Good new Rosegirl Anything that makes life easier is a bonus. I should be receiving mine by the end of the week, hopefully.
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Re: Daflon 500mg tracking thread

Postby munchkin » Mon Oct 03, 2011 12:47 pm

My order of Daflon came today, I'm almost as nervous as I was before the first CCSVI procedure. :smile: My cousin and I will be trying. She has had MS for about 30 years and didn't have any major changes from her CCSVI procedures.

Has anyone noticed if it has helped with cold hands or feet?
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Re: Daflon 500mg tracking thread

Postby Ruthless67 » Tue Oct 04, 2011 5:26 am

Rosegirl,
Sounds like we are having similar relief from our "heavy Leg symptoms", now we just have to figure out what to do about the stiffness. Your suggestion to "building muscle strength" sounds good to me, It is true, I haven't exercised these darn heavy stumps in a while.....so I'll start today.

Munchkin,
I suffer from cold hands & feet. I have noticed my feet are definitely warmer. I'm now quite often kicking my slippers off in the evening because I am too hot. My hands do seem somewhat better, but they have raynaud's disease, frostbite and bi-lateral carpal tunnel syndrome, so I don't know if Diosmin will be of much help with them, but I am keeping an open mind.
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Re: Daflon 500mg tracking thread

Postby HappyPoet » Tue Oct 04, 2011 4:41 pm

Wow. There are so many of us!

Maybe someone should start a poll to find out how many pwCCSVI have lost their IJVs and/or Azy vein to occlusion, e.g., clotting, intimal hyperplasia, scarring, and/or unknown. Also, ask patients to post name of IR, number of procedures, and the date of last procedure.

David, it's early days yet, so please hang in there. I have a feeling, though, that this particular flavonoid hypothesis will only help a subset of "MS" patients, those with CVI. "MS" has so many hypotheses that it's almost crazy: infectious agents, congenital problems, environmental toxins, genetics, vertebral misalignment (CCVBP), nutritional deficiencies, autoimmune components, and venous obstruction, congestion, inflammation, remodeling, and hypertension (CCSVI and CVI).

David and Erika, if Daflon doesn't help me, I'm going to try N-acetylglucosamine. If that doesn't help, I won't stop looking for other ways to help my remaining neurological symptoms. UCC is controlling two symptoms and CCSVI controlled three symptoms, but I've restenosed at the six-month mark and anticipate losing my IJVs due to occlusion. :(

Everyone, congrats on your improvements. :smile:
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Re: Daflon 500mg tracking thread

Postby David1949 » Tue Oct 04, 2011 6:23 pm

HappyPoet wrote:David, it's early days yet, so please hang in there. I have a feeling, though, that this particular flavonoid hypothesis will only help a subset of "MS" patients, those with CVI. "MS" has so many hypotheses that it's almost crazy: infectious agents, congenital problems, environmental toxins, genetics, vertebral misalignment (CCVBP), nutritional deficiencies, autoimmune components, and venous obstruction, congestion, inflammation, remodeling, and hypertension (CCSVI and CVI).



Don't worry I won't give up on Daflon after just 3 days. :smile:
I have a 30 day supply. Unless there are problems I'll use those up before I come to any conclusions.

BTW maybe all of the issues you listed cause symptoms that doctors diagnose as MS. But they are really separate conditions that need different treatments. Maybe we are suffering different diseases that all produce symptoms classified as MS. Maybe that's why Liberation works for some but not others. Just a thought.
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Re: Daflon 500mg tracking thread

Postby Cece » Tue Oct 04, 2011 7:07 pm

HappyPoet wrote:UCC is controlling two symptoms and CCSVI controlled three symptoms, but I've restenosed at the six-month mark and anticipate losing my IJVs due to occlusion. :(

HP, do you know that both IJVs restenosed? Was this by ultrasound? Through ultrasound, the doctor should be able to tell what the restenosis is, namely if intimal hyperplasia or clotting are seen. If you are anticipating occlusion, did the doctor tell you that either of these was present? It is very possible to restenose without the loss of a vein being imminent. Tell me more, I am worried.
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Re: Daflon 500mg tracking thread

Postby Jugular » Wed Oct 05, 2011 7:55 am

I think that it is a great idea to include some basic tracking information that at some point I can summarize at the start of this thread. In my case Daflon seems to have augmented the benefits that CCSVI provided, right at the point (9 months post angio) where I was worried about having stalled or lost ground (with the ever-looming paranoia about restenosis).

In any case, the critical information as I see it is:
Date started:
Dosage:
Description of MS:
CCSVI diagnosis:
CCSVI treatment (type, date(s), clinic(s):
CCSVI treatment results:
Daflon 500mg results:

I will post these at the start of the thread as well.
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